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Committee HearingUnicameral

Health and Human Services/Urban Affairs Committees - Room 1023

September 18, 2026 · Health and Human Services/Urban Affairs Committees · 36,452 words · 4 speakers · 77 segments

Welcome to the joint hearing of the health and human services and urban affairs Committee.

Senator Brian Hardinlegislator

I'm Senator brian hardin. I represent the banner cumulative and scottsbluff counties of the 48th legislative district in western Nebraska. I serve as chair of the health and human services Committee. And I'll start by having members of the hhs Committee introduce themselves, starting on my far left with Senator riepe. Thank you, chairman murphy riepe. I represent omaha at district 12. I feel like I almost need to stand up. Most of our hearing rooms don't have this little lift, if you will. So I feel like I'm a little guy hiding down here behind me. I apologize for that. But we're glad to have such a big crowd here today. And thank you very much. Thank you gentlemen. Good morning. Beau ballard from district 21 in northwest lincoln and northern lancaster county. Dan quick, district 35, grand island. Senator, class Senator. Stanton from district 37, which is in buffalo county. Kearney shelton and gibbon. And we have just one on the urban affairs Committee. And we have one member. Good morning, Senator victor rountree, district three representing bellevue and papillion urban affairs Committee. It's good to see everyone this morning. And I screwed up because dan quick is on both of these schedules. Okay. He does double duty assisting the Committee today. To my left is our research analyst, bryson bartels, and our Committee clerk, corey beerbaum. Joel, would you introduce yourself? My name is joel. I'm from lincoln. Awesome. Thank you. Today's hearing will be invited testimony only. If you've been invited to testify, please fill out a green testifier sheet located at the side of the room and hand it to the page when you come up to testify. Written material may be distributed to the Committee members as exhibits only while testimony is being offered. Please have at least 12 copies. Hand them to the page for distribution when you come up to testify. We do not accept oversize exhibits, cds, thumb drives, or other electronic exhibits as they cannot be transcribed. To better facilitate today's hearing, I ask that you abide by the following procedures. Please silence your cell phones. When you come to testify, please state and spell your first and last name for the record before you testify. We'll be using a three minute light system. When you begin, the light on the table will be green. Yellow will mean you have one minute remaining. The red means you need to wrap up your final thought and stop. Questions from the Committee may follow, but do not count against your time. With that, we will open with me. This is for the LB 737 olmstead hearing pursuant to Nebraska revised statute section 81-6122, subsection four, subsection a from the newly passed LB 737, the health and human services Committee and the urban affairs Committee are required to hold a joint hearing to assess the progress of the olmstead plan and potential legislative solutions. Today's first hearing will focus on LB 737.

Senator Brian Hardinlegislator

The progress of the olmstead plan. At the conclusion of the LB 737 hearing, we will take a ten minute break to allow the urban affairs Committee members to exit and then begin with Senator roundtree's LR 404 hearing. And with that, we are ready for the following testifiers. Mr. Tony green. Welcome. Good morning. Chairman harmon and vice chair and members of the health and human service and urban affairs committees. My name is tony green, tonygreen, and I'm the director of the division of disability and aging in the department of health and human services. I appreciate the opportunity to provide an update on Nebraska's olmstead plan and the department's ongoing efforts to support nebraskans with disabilities in the most integrated, community based settings appropriate to their needs. Nebraska's olmstead plan has its foundation in Nebraska revised statute 81, 6121 and 122. The Legislature first established these provisions in 2016, with subsequent amendments in 2019 and 2026. The statutory framework is based on the united states supreme court's 1999 decision, olmstead versus l.c. This ruling established, at its core, that unjustified institutionalization of people with disabilities violates title two of the americans with disabilities act. The Legislature specifically recognized that the department of health and human services, in partnerships with other state agencies, should develop a comprehensive strategic plan to provide services to qualified persons with disabilities in the most integrated, community based settings. Pursuant to the olmstead decision, the statute established both a process and an accountability structure for the plan requiring dhhs to work in collaboration with other state agencies, including the department of correctional services, economic development, labor, transportation and veterans affairs, as well as the state department of education, the university of Nebraska, and the equal opportunity commission to engage and and to also engage in olmstead advisory Committee. In the planning process, dhhs developed the state's first strategic plan for disability services in 2019 and submitted it to the Legislature. The statute also requires dhhs to arrange for an independent consultant to assist with the continuing analysis and revision of the plan to determine whether its benchmarks, deadlines and time frames are in substantial compliance with the department reporting to the Legislature every three years on the progress and plans were changed. Revisions. Nebraska has followed this process consistently, with evaluations conducted by the technical assistance collaborative, or tac, in 2019 and 2021, and by partners for insightful evaluation or pi in 2024. Pi is again under contract with the department, and the next independent evaluation will be completed in 2027. These evaluations have supported subsequent revisions to the plan in 2024 and 2025. Based on recommendations from these independent consultants and the olmsted advisory Committee. The next evaluation will be submitted to the Legislature in december of 2027. That evaluation will be somewhat different from the 24 eval, as Nebraska has moved from a three year planning cycle to a six year strategic plan.

Senator Brian Hardinlegislator

The 2024 evaluation informed the development of the current plan, which extends through 2032. As a result, the 2027 evaluation will serve primarily as a mid-point assessment of the current plan, rather than a development of an entirely new three year plan. The 2024 evaluation provides a useful baseline for understanding where Nebraska is today. Liz gebhart morgan, the principal investigator with with partners for insightful evaluation, will be presenting after me, and she can provide much of the detail into the plan and the progress that the plan has made thus far. Looking ahead, the department will focus on implementing the current plan through 2032, continuing to engage stakeholders, improve our outcome measures, strengthening interagency coordination and preparing for the 2027 independent evaluation. We'll continue working with the olmstead Committee to assist in the review and development of any subsequent updates to the plan. The Committee continues to meet quarterly and has several workgroups that are focused on specific areas of the plan. The participation of individuals with disabilities, families, advocates, providers, state agencies, and other stakeholders is an important strength of the Nebraska's approach to olmstead planning. At the same time, while the advisory Committee and its work groups provide advice, expertise and recommendations, ownership of the plan and responsibility for its implementation rests with the state. The Committee is an advisory body. It does not replace the state's responsibility to establish priorities, allocate resources, implement programs and continue advancing the goals of olmstead to serve and support individuals in their homes and communities. Nebraska is committed to community integration. We've established a planning process and advisory structure, and independent evaluation and legislative oversight. We've also made meaningful progress, including eliminating the developmental disability registry wait list in 2025. We will continue to build on that progress. Be honest about where the system still falls short, and use olmsted plan the olmstead plan as a practical tool for incremental improvements to the outcomes for nebraskans with disabilities. I thank you for your time, and I'd be happy to answer any questions for this hearing. Thank you, director greene. Questions from the Committee. Senator riepe. Thank you, chairman, and thank you for being here, mr. Greene. My question would be, this is the next formal review from the external consultant is in 2027. Given the issues at hand, I'm concerned about expanding this up to six years instead of the three. And we did. Was there consideration given to the idea, given the issues to back us up to 26? Because, you know, I was trying to speed read this thing, but it looked to me like it could be two years as well, 2 to 3 years to take a look at it in at this time as opposed to waiting. Time is of the essence, it seems. And so can you respond to that, please? Yeah, I sure can.

Senator Brian Hardinlegislator

So and certainly when pi is up here and kind of talking about the process we went through to move from a three year plan to a longer term, more strategic plan that involved the Committee and, and all of their input as well. I would agree that time is always of the essence. We always have something in front of us that needs to be addressed and enhanced and strengthened. I think what you'll also find, as you hear more about the details of the plans, these are generally very long term fixes, right, that it will take housing as an example. Housing is one of the goals that is in the olmstead plan that we want to increase and make sure that we have safe, affordable housing for folks with disabilities. That's a long term thing that has to continually be worked on and fixed. It's not something that would lend itself to a one year will solve that issue, but there certainly are incremental steps that can be made along the way and the overarching strategic plan. And so it was a recommendation of the consultants after evaluating several other states and their olmstead plans and kind of how they structure them. And with the Committee's approval, move to a six year plan. Is there some opportunity for adjustment if issues change significantly, to come back and say, six year plan has gone awry and we need to go back and take a look at it after maybe three years, four years, whatever. Yeah, I mean. I flexibility in there. Yes, yes. I mean, the state can kind of determine how long it wants the plan to run at a time. But I would tell you that regardless whether it's a three year plan or a six year plan, there is ongoing regular meetings of the Committee, as well as all of the subgroups who are working on many of the more granular steps to to achieve those overarching goals. The plan is really it has goals that are quite lofty right around housing or transportation, things like that. The work that's done on a regular and much more routine basis by the Committee, as well as those work groups and all of the other partners that I mentioned at the state agencies. That's an ongoing piece of work, but there are certainly opportunities that as things change or a new strategy needs to be put in to address one of those overarching seven goals that can certainly happen. Just seems to me in health and human services, including health care and the whole bailiwick. Six years is a long time. Any more with any kind of strategic planning? It seems, you know, you almost plan for the next month. But thank you chairman. Thank you tom. Thank you chairman.

Senator Brian Hardinlegislator

And I probably should know this, but are there any federal requirements that we stay within or is each state get to decide how their their plan works? There there is not. In fact, it's not necessarily even a requirement that states have an official olmstead plan. Many do as ways to. To show their efforts to comply with the. The ruling from 1999. But it's not a mandate or. There isn't any set structure to how that has to happen. So we just follow whatever we have it in statute. So we have to follow what's in there. And then. Yeah, so our our statute in Nebraska requires the creation of a plan. The statute also directs the frequency of the evaluation that that independent evaluation is every three years. And those would be the two things in statute that are more clearly defined. Okay. All right. Thank you. Senator rountree. Thank you so much. Thank you, mr. Green, for our opening and testimony regarding the housing. One of the questions that I had on the previous time with you in previous briefing, looking at the slides as part of urban affairs and working with our olmsted members regarding housing, we were trying to determine how much housing we have available for our disabled community. How do you track that and how do you determine what's available? Do you work with builders through this commission to determine that we need more? Well, what we have is sufficient. How do you track that to get to the number needed? Yeah, I think that that's a great question. And you've pointed out a significant challenge for our state in really trying to identify what is that number. And, and it often sometimes is, is tricky in the definitions, right? Affordable to one is not affordable to, to another. And so, and even accessibility, right. Can can vary widely. And so that has been a challenge that the Committee as well as the work groups who are kind of focusing on housing, have been challenged with. We do not today that I'm aware of, have a like an inventory county by county or by state that says, here's what we do have available in affordable housing. But I know it's something the Committee is working on trying to establish. So it's a vibrant living document. As issues arise, you're able to resolve those and take care of those without waiting for us to get to maybe december 27th. We just kind of handles as we as we get to those. Is that correct? When I say that it's living and it's vibrant and alive. If an issue arises today, something that the Committee identifies, you can implement today to fix those and continue to provide good life. Yes. So those committees meet regularly to tackle kind of their part of the plan.

Senator Brian Hardinlegislator

And there are oftentimes in those meetings that that current real time issues are brought to that Committee and they try to formalize strategies or how they're going to tackle that to achieve that larger goal. Thank you. Senator. Thank you, Senator hardin. A question along that line to come up with that data. Is it more important or. I guess we talked about that last year with the bill on larger cities. Is it more important to have it by cities or counties, or what's the best way to just to kind of get a good feel? Yeah, I, I don't know if there's a best I think, you know, many of the, the communities, I mean, they have housing plans like, like omaha and some of those larger communities, they, they, they may not always get into that granular level of detail that might be important to us trying to find, you know, again, that safe, affordable and accessible housing. So, you know, certainly at a at a community level, city level or county level would be helpful. Thank you. As you said before, defining the term. Affordable is a challenge. There are a few different situations, terms within olmsted that are similar. So from a concept standpoint, can you just kind of share with us part of how that process of wrestling with the defining of various terms happens? What are the benchmarks that are used to develop? What are the intended outcomes? It's possible, for example, to know what it is you're you're looking for. Can you give us a sense of what the process looks like as you're wrestling with things like affordability across the state, as you're looking at what is safety? What is safe for 1st may not be safe for someone else and so forth. Those are concepts that have to be wrestled with with a fair amount of individual consideration. But can you kind of tell us how the department kind of approaches that moving target? Yeah. So you're exactly right. It is hard to define that. We try to take at the Committee level and certainly in, in our evaluator that that reviews all of the plans from across the country. We try to just tackle it as it's presented to the department. Right? The we want to make sure that we're not minimizing anyone's voice at the table. But but you are right. Affordability is, is a term that that can mean a lot of different things now generally for, for the work that we do. That often becomes a very finite amount of resources that folks have available to them. Who experience disabilities, right, either through social security and income as such. And so that becomes a very finite, limited amount of money. And that becomes your affordability and your reality.

Senator Brian Hardinlegislator

And that might look different for somebody else with a disability that maybe wouldn't be drawing social security, but still needs access to that accessible and affordable housing. So I don't know if I've answered your question directly, but I think it it is a challenge that the committees tackle in trying to take all of the data and the input that they have from stakeholders and create those strategies that will help move some of those larger goals that are identified in the plan. Other questions for director green. Seeing none. Thank you. Thank you sir. Liz. Gephardt. Morgan. Welcome. Good morning. Good morning, chairman harmon. Members of the hhs Committee and urban affairs Committee. I'm liz gephardt, morgan, lizgebhart hyphen morgan. I work at partners for insightful evaluation and was the primary author of the olmstead plan evaluation report submitted to the Legislature in december of 2024. And I really appreciate the opportunity to be here to talk to you today about that. As you know, Nebraska statute requires an independent evaluation of the olmstead plan every three years, really to assess progress and identify opportunities for potential revision. Pi was responsible for evaluating the 2023 to 2025 olmstead plan, primarily focused on fiscal year 23 and 24. So looking primarily at july 2022 through june of 2024, just given the nature of the timelines, through our evaluation, we explored the progress that was made on the plan, any observed impacts and improvements, facilitators and barriers to that progress, and then opportunities for strengthening the plan. And we looked at this through a variety of data sources, including interviews. We conducted a survey for individuals with disabilities and their families, a survey with partners and advocates, and then also focus groups. Another aspect of our evaluation was actually doing a review of olmstead plans or related documents from 22 states and the district of columbia. There's additional information about those data sources in ththe handout. For more context, as part of our review of the olmstead plan, there were seven goals that we were looking into, and among those seven goals, there were 41 outcomes. Those are monitored by dhhs on an annual basis through benchmarks based on that data. The fiscal year 23 data indicated that 71% of those annual benchmarks had been achieved. The next fiscal year, 56% of those annual benchmarks had been achieved. It varied based on the topic area about the level of progress and the accomplishments seen, and there's qualitative context provided in the evaluation report and subsequent summaries that were provided to each of the workgroups, so they could dive into the data a little bit more fully. We we identified many different facilitators and successes we consistently heard across the board, no matter what topic area that limited funding, workforce shortages, and also just limited information and awareness about the olmstead plan really prevented some of that progress.

Senator Brian Hardinlegislator

A review of other state plans was a really good starting point and kind of point of comparison for the state of Nebraska. On average, states seem to have seven priority or goal areas, which Nebraska was right in line with, but Nebraska had surprisingly way more outcomes compared to other states. Like I mentioned, Nebraska had 41 outcomes that they were measuring. On average, states tended to have 26 long term outcomes that they were monitoring over the course of the olmstead plan. Based on these findings, one of our key recommendations was to modify it from a three year plan to a six year plan, and that was done for a variety of reasons. But the key one being that you can then use the required evaluation as an opportunity to do a mid-point assessment of your evaluation plan and have opportunity for thoughtful dialog and course correction on the olmstead plan. We also made recommendations to make the plan more manageable by reducing and refining really the number of outcomes that are included in the plan and combining similar goal areas to make it a little more streamlined. Again, I appreciate the opportunity to be here and I'm open to any questions. Thank you. Questions. Sarah. Clouse. Thank you, Senator hardin. Thank you for being here. I'm probably the least knowledgeable of anybody up here on this, so excuse me, but when you're talking about reducing the number of outcomes, are we going to have people falling through the cracks or what type of outcomes are we going to be losing? We're not necessarily losing outcomes. I think we're being more thoughtful in what we're measuring, since we're also trying to balance the administrative burden of capturing all of that data and consistently monitoring it. And so we really tried to be intentional with each of the workgroups about identifying the outcomes that were truly crucial to the vision of each of the priority areas. Thank you. And. Senator ballard. Thank you, chair. Thank you for being here. So we've heard today about the challenges presented in the evaluation. So talking about housing and transportation, what other challenges are we missing that aren't as well well known to the evaluation. Specifically for the evaluation or. Correct some of the outcomes that were that were missing? Big challenges were the limited funding. A lot of people talked about how people don't have a very good understanding of what the olmstead plan is to know whether we're making progress, and I can provide follow up information as well, since each of the workgroup areas got a summary of all the different barriers that were brought up through the qualitative findings and also the surveys that we conducted. So it varies by topic area, but definitely the limited funding workforce shortages, even with housing, whether they're contractors available to build the affordable housing or accessible housing and things of that nature. Thank you. Senator, quick. Thank you. Chairman.

Senator Brian Hardinlegislator

You know, on the on your handout, one of the handouts when you and you talked about it a little bit, but the 71% benchmarks in 2023 dropped to 56. And is that because maybe you accomplished some of those in 2023? Or what was the reasons for the drop? Part of it, we treat it as a living document. Very much so. And so what was challenging is that, and one of the goal areas, we actually lost funding. And so the initiatives connected to some of the outcomes and benchmarks couldn't be accomplished. And so when funding changes or the political climate changes, it just makes it tricky to follow through on goal earmarked. Things I should know. But how does the funding is that for the state then, or is that funding from. How does that work? It's through various departments, so I'd have to double check on which federal agency it was specifically for. Oh, it's federal funds, probably. Okay. All right. Thank you. Is there a riepe. Thank you. Chairman. I guess I want to build. Trust in your organization such. And so I'd like to know a little bit. Did. How long is your organization your independent of dhhs. Is that correct? Okay. And how long have you been serving in this. I'll call it a consulting role. Yeah. I've been with partners for insightful evaluation since 2020. And then before that was an evaluator with dhhs and then was in the state of missouri. Okay. And do you have agreements with other states outside of Nebraska? Yes, we do not specifically for olmstead, but we also have agreements with the state of maine, the state of colorado. And I think we had one in north carolina. I want to say I'd have to double check on that with my. Okay. That's helpful to establish this credibility for me. Thank you. Chairman. Any other questions, Senator ramsey? Thank you, chairman, and thank you so much for your testimony. As you have been evaluating and producing reports. One of the questions or one of the oppositions to the bill that brought us here was that we get the reports and nothing's ever done. There's no outcome from the reports. And I said our desire was that once we got the report and this update, if there are any shortfalls or areas that are missing that we can address legislatively, that would be a desired outcome. So as you have been evaluating and producing reports, has there been any viable legislation that has been brought forth based upon what you've determined? That would be a really good area to explore as part of our next evaluation of the olmstead plan. Off the top of my head, I can't think of any legislative solutions that would help modify that, but I think it's definitely worth noting to explore in our next evaluation. Thank you. And second question, paul, we talked about limited funding.

Senator Brian Hardinlegislator

That's that's the key thing. Has there been a change to funding? Has there been a decrease drop in funding availability? I would have to look into that. We just got the contract for this next olmstead plan on september 1st, so I haven't had a chance to dive in to see what changes have happened since we submitted the last report. All right. Thank you, Senator. Thank you chairman. Along with doing the the reviewing the plan, then do you also are doing evaluation? Do you also give recommendations then to the Committee then? Yes, yes. We include recommendations in the full report. And then we present that to the olmstead advisory Committee. And I'll talk through each recommendation how we came up with those recommendations. And ultimately they decide which recommendations they want to pursue and which ones they want to hold on. Okay. All right. Thank you. Any other questions from the Committee? Thanks for being here. Thank you. Appreciate it. Lady foley. Welcome. Thank you. Good morning. My name is lindy foley. Lindyfoley, and I am the administrator of Nebraska vocational rehabilitation. We are an office located within the Nebraska department of education, Nebraska. Vargas mission is to assist people with disabilities in finding, keeping and advancing in employment, while also assisting businesses with recruitment, training and retention. Nebraska bar's mission and values, especially those related to supporting individuals with disabilities to live a meaningful life in the community they choose, align very closely with those outlined in Nebraska's olmstead plan. I've had the privilege of serving on the olmstead advisory Committee for many years, and within the last couple years took on the role as the facilitator for the olmstead advisory Committee work group for employment. Though there is a history in my involvement with olmstead. Today, I'm testifying to share progress from the previous year on behalf of the employment work group. This work group meets monthly. The agenda is created based on the goals and activities outlined in the employment section of the olmstead plan. There are a variety of stakeholders who attend these meetings representing state agencies, service providers, a subject matter expert, advocacy partners, and individuals with lived experience. There are three employment goals listed in Nebraska's olmstead plan. In alignment with these goals, the workgroup is focusing on helping to ensure those who deliver supported employment services. Are those services available for individuals who, because of the nature and the severity of their disability, need intensive and individualized supports in order to access and engage the workforce. We want to make sure that we're utilizing evidence based, supported employment practices. We're striving to provide services in the most timely and individualized manner, and we're emphasizing the conversation about employment happening early and often. There are goals accomplishments that we've we've certainly seen this last year. And those include for goal one across agency and provider. Focus group convened to discuss current practices and common competencies for effective service delivery.

Senator Brian Hardinlegislator

We did a sampling of individuals who are currently receiving supported employment services or previously received services, who we interviewed and were given the opportunity to provide feedback on levels of satisfaction, meaningful services and also areas of improvement. The workgroup also shared resources and trainings throughout the year to gain increased understanding of evidence based practices. Under goal two, the employment workgroup generated a list of metrics to be studied in order to better understand timeliness and engagement of services and quality outcomes. As a result, we are created a supported employment data snapshot and the workgroup studied the data together, asked questions and offered recommendations. And finally, under goal three, the workgroup discussed and shared existing resources for students, families and teachers, highlighting the benefits of employment and available supports. There was time dedicated in between meetings and also as part of the monthly agenda. To learn more about business outreach and to brainstorm more coordinated ways to support businesses. In closing, the employment workgroup is a dedicated network with a focus on advancing the goals and activities outlined in Nebraska's olmstead plan. Some members serve on the olmstead advisory Committee, while others attend because they share a passion for ensuring all individuals have access to employment. This workgroup has advanced into a center of accountability and sharing. In order to maintain a momentum and drive impact, we must continue to discover new ways of engaging key partners. Some of these key partners are already identified and listed in the olmstead plan. Others will be realized as the priorities evolve. This isn't work. Any one agency, office, provider, or individual can do alone. The power of our plan is leveraging the collective interest, resources and determination to make things better for those impacted most by Nebraska's olmstead plan. Thank you for the opportunity to testify today. Thank you. You bet. Questions? Senator. Thank you so much, chairman. Thank you, ma'am, for the testimony and giving me some insight onto this particular part of the plan. Just a couple of questions. We talked about tg supportive services. However, were people into the workforce and also bringing new partners on board. I know that it's kind of spread across the board, but are we seeing new partners come on board where we have place to place our members for employment and budgetarily? Have you seen a decrease in availability of funding for providing those supportive workforce opportunities? I guess, has anybody had to come out of the workforce because of funding? Okay. I'm not aware of anyone coming out of the workforce due to funding, so I'll start there. I will also mention that specific even to Nebraska vr, we have dedicated business services staff who are constantly doing outreach to communities across the state to talk about businesses or talk to businesses about the benefits of hiring people with disabilities. We speak to hundreds of businesses, and we have partnerships with them in order to help support that.

Senator Brian Hardinlegislator

We also know that service providers across the state, who are our partners in delivering supported employment, have business services staff and are out working in their communities to help spread the information about the benefits of hiring people with disabilities. All right. Thank you. So sometimes our supportive services could be one on one, like my son was going to go to work with goodwill, but because he has apraxia and inability to communicate effectively, we would have had to have one individual to come back and work with him in that setting in order to communicate for him. So we do have one on one services like that as well. Yes, we're actually in supported employment. We want to make sure that our our services are individualized. So part of what we consider when we're developing an employment plan is what those supports are, which may include a one on one such as a job coach. Okay. Thank you. You're welcome. Senator valley. Thank you, chair, thank you for being here. Thank you for your testimony. I'm curious about that. That workforce readiness between school and entering the workforce. What kind of resources do you provide to parents, teachers? Because there is a difference between the structure of school and then going into the workforce. Can you talk a little bit about the resources you provide? Sure. So specific to Nebraska vr, we have staff, vr staff who are in all of the high schools across the state. So when I mentioned talking about employment early and often. As soon as 14 years old, our staff are available to start talking to students with disabilities and their families to set the expectation about the world of work so early. We're trying to get to that planning to talk about services regardless of the severity of a disability, and then we can provide that bridge then into adult services or to employment services. So we might be providing tours to youth. So they learn about the workforce. They may be interviewing a business to learn more about the workforce, even going out and doing some work based learning. So we're really trying to set the stage early while the student is still in high school, but then also helping to prepare family members and understanding what that support looks like once the high school experience is done. Okay. Thank you. Beth. Is there a quick. Yeah. Thank you. Chairman. Is there accessibility in the rural areas? I mean, for like so so adult services. So if you have someone with traumatic brain injury or has a disability, is there a location throughout every county or is it within certain cities? How does that work? Again, specific to vr services, all counties are supported by 12 field offices across the state. So it would be a matter of connecting those individuals and those communities. Our staff do travel to those counties because, again, we're working with businesses.

Senator Brian Hardinlegislator

We're meeting with individuals one on one to talk about employment. Thank you, Senator. Thank you. Senator, a question, and you just kind of alluded to that. Do you have any vr desserts, so to speak, across the state, or do you have areas that are significantly understaffed to provide those services? We are actually fully staffed right now, so it isn't a matter of staffing. We do travel, so we're out on the road trying to make sure that our areas have the appropriate coverage. I think maybe to part of your question, we see more referrals to employment services in some areas rather than others. And so we do track that data. So we have a better understanding where we could be doing more outreach to those communities to increase the number of people served across the state and in those particular counties. Thank you. Questions. Thank you. Thank you. Tobias orr. Good morning. Thank you for having me. My name is tobias orr. That's tobias last name or orr. So I'm the director of the Nebraska assistive technology partnership, also known as atp. We are Nebraska state assistive technology act program, and we're located within Nebraska vr and the department of education. Our mission is to help nebraskans with disabilities learn about and obtain the assistive technology they need to live, work and participate fully in their community. Since 2016, I've had the privilege of serving on the advisory Committee, and for the past several years, I've chaired the housing work group. Today, I'm here to provide an update on the work of the housing work group and the progress we have made towards the Nebraska homestead housing goals. The housing work group brings together representatives from state agencies, agencies including dhhs, department of economic development, Nebraska investment finance authority, along with advocates, housing providers, individuals with lived experience. The group met monthly over the past several years and recently transitioned to a quarterly meeting schedule. As our work has matured, our primary responsibility is to monitor and advance the four housing goals identified in Nebraska's olmstead plan. Over the past year, we've had significant progress in goals one, two, and four, with work on goal three to begin next spring. Under goal one, cross listed resources to enhance access to affordable and accessible housing for individuals with disabilities. We're continuing to expand the use of Nebraska dot find help.com as a centralized housing resource. All low income housing tax credit properties and developments. Receiving department of economic development funding are now listed on the platform. Also, accessibility information was enhanced by updating property surveys to include sensory and mobility accessibility features. These improvements make it easier for individuals with disabilities and service providers to identify housing options that meet their needs. To ensure the platform is widely used. Training has been provided by nifa to state agency staff, regional housing coordinators, housing authorities, property managers, educators and social workers.

Senator Brian Hardinlegislator

The impact of these efforts is clear between july of 25 and june of 26, Nebraska dot find help.com averaged nearly 4850 searches per month, and approximately 65% of those related to housing under goal two. Increasing housing access for individuals with serious mental illness. A review done by nifa department of behavioral health and department of economic development identified several barriers, including communication gaps between agencies, administrative challenges, eligibility inconsistencies and delays in connecting people with available housing to reduce these barriers. Actions actions such as trainings for dhhs divisions and rural behavioral health staff, increased outreach to housing developers and property managers, and developing meeting cadence with nifa and dhhs to address housing needs are being implemented. One of the most significant accomplishments over the past years is the award of the hud 811 project rental assistance funding to nifa in partnership with dhhs. This award will provide 140 rental assistance vouchers for nebraskans with disabilities. As of this month, nifa has approved the first round of developments participating in the program, including six new construction projects utilizing 35 vouchers with units expected to become available by 2028 under goal for supporting individuals with disabilities to remain in their home, atp has improved its case management system to streamline projects and reduce delays. We've enhanced contractor management tools, improved financial tracking, and expanded our contractor network by adding 12 new contractors this year, with eight more currently in the onboarding process. In closing, the housing workgroup continues to demonstrate the power of collaboration through strong partnerships, consistent engagement, and a shared commitment to community integration. We're making meaningful progress towards increasing access to affordable, accessible housing for nebraskans with disabilities. Thank you for the opportunity to testify. Thank you. Senator. Thank you. Senator hardin, you made a comment that just kind of triggers my line of thinking. When you're talking about economic development and issues we've had, it's been widely publicized. The cuts and all the things happened in economic development. When your partnership with them, how is that working in the last several months? And, you know, if you're uncomfortable answering that, that's fine. I'll I'll take that. I just want to get a good feel of how that relationship is working and what we're seeing in that department and how does it impact what's going on here. So as far as the. Workgroup goes, they're a valued partner. I can't speak to the finances as far as the goals go. They've been participating in the activities to move those forward. But as far as the finances go, I can't. But you're getting the support you need. I believe so, yes. Okay. Thank you. Senator. Thank you so much, chair. Thank you, sir, for the testimony. It was quick. So I was trying to get some notes down. I'll give you three minutes. So so the Nebraska find help. That's a first starting point that most people can use. And that's been successful.

Senator Brian Hardinlegislator

We had 850 searches per month on that. $4,850 000. Okay. So that's quick. So I missed 4000. Okay on that. So that does provide a lot of good opportunity or information back to those that are searching to find homes and have those needed. Okay. So then we talked about the mental health illness and awareness training. Can you just hit just one more time for me? So as far as for finley.com or, or the. For the yes.com and also for members to be able to provide services or homes. So as far as.com. So it's an ipo that heads that up. And they've been doing trainings and presentations everywhere. I've run into john turner consistently at every event talking about finley.com. And just to clarify, findout.com is a has various resources on it for individuals, from housing to food to everything needed for living. We focus on the housing part. That's why they gave you the numbers that 65% of the searches on find help for Nebraska are housing related housing. As far as the serious mental illness, I know they've been doing training to regional behavioral health coordinators and other divisions, specifically pointing towards find health.com. And then I think just some other of the barriers that they identified in their review, they're doing training to kind of overcome some of those. Okay. Thank you. What about those hud funding vouchers? Yes. Those again. As much as I can. Yes. As much as you can. So yeah. So Nebraska was awarded the 811 housing vouchers. And I know 35 of the 140, I believe it was have been issued just this month, I think might have made that decision. So those will be attached to, I think it was how many projects it was. Find it real quick. Maybe 60. I don't have the number of the exact amount of projects, but they are moving forward. So these will be new new builds, apartment complexes with housing vouchers attached to specific units. Okay. Outstanding. And lastly, on the go forward, we had like 12 new contractors with eight more on board. Yes. To help address the housing need. So specifically that's atp. So we do home modifications or assessment modifications for all the waivers in Nebraska as well as we work with Nebraska vr some private foundations. One of our biggest challenges is contractor recruitment. Specifically when we're using waiver dollars, those contractors must be medicaid providers, no different than a nurse or a doctor. And anybody that knows, contractor knows they don't like paperwork. We also have background checks and things like that. So it is it is difficult to recruit contractors. We put a lot of effort and resources towards making that process as streamlined and easy as possible. And then just the marketing, the outreach to get them to come on. Thank you so much. I appreciate it. Thank you. Senator, quick. Yeah. Thank you chairman.

Senator Brian Hardinlegislator

Can you find that there's any challenges moore in rural areas for housing and versus, you know, like omaha or lincoln or even a grand island? I would say rural. Yes. There's there's more challenges there just because you have less apartment complexes, just less units available. As far as like the, the waiver just less units available. As far as like the, the waiver programs and home loans that we do, we can serve any community. And so we can work on single family homes just as easy in rural as we can in urban. But I'd say overall, the housing challenge, I think rural has a bigger, bigger hill to climb just because of the lack of units, lack of affordable housing, things like that. Yeah. And you were talking about the contractors and do they travel to rural areas then to do some of that work then? Yes, yes they do. They travel quite a bit. But we're always our bigger struggle with contractors probably is more rural, I'd say, but we have some great ones out west. Our biggest struggle right now really is on the east side of the state. We just don't have enough for the the sheer amounts of referrals we're receiving. Okay. Thank you. Welcome. Thank you for being here. Thank you. Senators. Kirsten larsen. For everybody. Welcome. Hi. Good morning. Yes. So my name is kirsten larsen, and that's spelled kristenlarsen. And I'm here representing the Nebraska council on developmental disabilities. Today, and I just want to give you a little bit of background about the council, although we're administrated by dhhs and our members are appointed by the governor, we operate independently. So our statements don't necessarily reflect the views of the governor or the department. We're federally mandated, and we're an independent body comprised of individuals who have developmental disabilities, their family members, community providers and agency representatives, and we all advocate for systemic changes and quality services. And the federal dd act authorizes state dd councils to provide to provide information to state policy makers to to address these issues in a nonpartisan way. So the council is very supportive of the olmsted movement and the decision of in 1999. And we're so grateful that Nebraska's unicameral helped make it possible for Nebraska to have the first olmsted plan. I also want to historically let you know that the council put a pretty significant investment in 2018 to fund the. The contractor ptac, who created the first employment or olmsted plan. I serve on the advisory Committee and I'm also on the employment work group and other additional work groups. Our council staff actually are involved with four work groups today. I'm just going to focus on employment. First of all, I want to thank lindsey foley for her leadership as the employment work group chair and facilitator. I think we're making a lot of progress. We have invested quite heavily in employment.

Senator Brian Hardinlegislator

So you're receiving an executive summary from doctor lisa mills, who we contracted with in our past state plan to look at ways we could improve employment for those with intellectual developmental disabilities. And her work in 2015 came up with this really great report. So the executive summary is there. And then in addition, we hired her for an additional year. She helped us facilitate a supported employment work summit and then create a coordinated, supported employment work plan. And as a result of that, we hired an in state subject matter expert to continue that work plan. And we've made a lot of progress, and we're really happy that some elements of the work of doctor mills recommendations and the olmstead or the work plan have been incorporated into the new olmstead employment goals. So here's just a few things I want to stress the importance to keep the movement going, we need to prioritize meaningful employment and data sharing. Clear data communicates what Nebraska values, and Nebraska vr has really made strong improvements in that area by releasing some of the outcomes specific to disability groups. The next thing I want to stress is that we need to ensure that dhhs and Nebraska vr share data on waiver participants who are referred to and ultimately receive services from vr. Both agencies must collect and share the data on the number of transition age youth, those that are leaving high school and are they deciding to use vr services, or are they going into waiver de services, which really is more expensive in the end? Miss larsen, over three minutes. Okay, I do, I might, yes, and there's additional recommendations. You can see that. But bottom line, I think it's been alluded to that every work group needs to have the key agency partners there. And without key agency partners, it's really hard to make progress on. And we need a more detailed plan to ensure that we're making meeting deadlines and not missing deadlines and that sort of thing. Thank you. So I know it's a lot. I'm sorry. I try to get it under three minutes and but. Thank you so much, chair, and thank you so much for this testimony. I put the spreadsheet here as we look at the sharing, collecting and sharing of data. Has there been any difficulty in getting data back and forth or. No, actually, well it hasn't, it was a little delayed, but I'm very pleased that Nebraska vr has been able to share that data, and they've been able to break it out into specific disability groups. So we've been able to see the data of how many people they're serving who have intellectual developmental disabilities, traumatic brain injury, autism, mental health, serious mental health issues. So that's helpful really.

Senator Brian Hardinlegislator

We want to look at the id population because the data across the nation, and I'm sure it will reflect in the state, is the population is severely under unemployed or under under. They're either not employed or if they're employed, it's just very little. So how would you propose to increase the unemployment rate? What would you look at? I think one of the barriers, Senator, to you is that, you know, I'm I'm a person with lived experience. I had a son that went through the education system and employment wasn't even it wasn't even a topic. And his ieps, it was like, he's too severe. We're just going to send him to a day program. And really, he he could work. And it's been proven that many people can work, but families don't know that. And I think we're doing a better job now that vr is in schools. But what happens is that transition period comes and they might qualify for dd waiver services. And so the the family just doesn't know what to do. And they oftentimes end up going directly into waiver services instead of pursuing employment because the transition isn't as seamless. And I think that has something to do with the Nebraska vr staff are not the staff that will follow them as they come into adult services, but a lot of that is just on information sharing and helping families understand benefits planning and really raising expectations for youth with intellectual developmental disabilities. Thank you. Senator riepe. Thank you. Chairman. I guess my question would be, as executive director of the Nebraska council on developmental disabilities, what kind of staff do you have to support you in your effort? I have it's myself and two full time staff that do the work, a lot of the work, but then our council is made up of 25 members and we're a collective council. So collectively we do work and it's important to highlight that we have top agency people on our council, including director green, who's been a very strong partner to work with over the years. But it is a lot. We have. We're a minimum allotment state to. So we have all this work that the dd act says we're supposed to do, but not as much funding. So we're. We do what we can. So you have I correct me, you have three. Three full. Time salaried folks. Okay. Thank you. And we're 100% federally funded. Okay. Thank you. Senator whitney. Yeah, thank you chairman. You mentioned on that on Senator roundtree's question about the the vr staff doesn't follow. Well, I think they're still there for folks, but I think there's a different referral process. Like they've been working specifically with, with, with people who are serving as pre eds or pre employment specialists with the vr staff.

Senator Brian Hardinlegislator

And then but those folks stay with the schools, with the high schools, with transition programs, they're not necessarily going to be the ones that help them out into the community. So I think there's just some systemic issues there that we don't quite have that it's just it it'd be easier if I know I'm working with my job coach here, and that job coach is going to continue working with me as I go into adult services. But the system is just not in Nebraska. It's not set up that way. We have hired a contractor or a sub recipient recipient, sean roy from transcend. He's been doing a lot of work with us. You can see on our website. And he actually visited with me and he said, you know, it'd be one of the ideas is if this vr could hire the supported employment providers that they ultimately use when, when folks are through transition to work with them in the schools instead of the vr pre ed staff doing that job coaching work, if they could hire the supported employment staff that are going to do the work anyway, as they then they can follow them along and it's a more seamless process. I should ask you, I visited like our goodwill in grand island, and they do a lot of work with people with disabilities and actually do some job training there. Is that just an added resource, or is that something that through. That. That I my understanding is that goodwill of greater industries, they are a supported employment provider. So they get re there's a payment system that's set up with Nebraska vr, and they're very passionate about meeting those demand or helping people work. The. The concern systematically is that when people start working, there's this milestone. And once they are employed, like for 90 days or something like that, once they reach successful employment, then the vr job coach will step back. But as we all know, employment can change. We can have a new manager, we can have the economy, can have some struggles. We can have covid. I mean, we would they need that coach to come in not all the time, but there needs to there needs to be a process for long term supports. And our system right now doesn't have that set up really well. Those supports really should be coming from the dd waiver system. And it's just because funding is so tight, budgets are tight. It's we haven't figured out a better way to address that so that, that it's supporting people and keeping their jobs because what happens, they lose their job. And you know what? They have to go back to vr, have another referral, and they have to restart that process all over again. So the cycle starts over again. And that's that doesn't make sense.

Senator Brian Hardinlegislator

Why are we not having a system that provides the job coaching when they need it after vr has faded and we've got supported employment and folks that work for like goodwill industries and others across the state. And I know this would be really tough, but is there a way that we can help educate some maybe parents so they would know, you know, what direction for their child once they're out of school? And yes, I think collectively as our work group, we're, we're, we're passionate about that. How do we reach families? And, you know, but we have to have other partners at the table like the department of ed, like how do we how are we getting that information to the transition teachers who then get it to the families? We funded shawn roy from transcend to do an elevating family expectations grant, where he did do some training specifically with families and at some transition conferences. So we're getting information out there. But like, you know, when you're a small staff and you're only have so much money to do contract work, it's really hard to address the concerns that family members have. And I'm also going to clarify that, you know, employment is not the answer for everybody. There are some folks with very severe disabilities or medically complex situations where employment really isn't something they want to do. We just want to support their quality, quality of life with good sustainable waiver services. So they're having meaningful days. Thank you. Seeing no other questions. Thank you. Cathy holt. Thank you. Cathy holt. All. Too much. Right? You all my testimony and. So and. And use my cheyenne. I think that's it. Okay. Thank you, thank you. Good morning. And and it's a process. So you'll just have to be patient. First of all, as a person with a disability, I'm requesting an combination of a lack of direction because my voice impairment, I do not. Consistently. And so. I just need a little. Flexibility here. We look forward to hearing what you have to present, what we look forward to hearing, what you have to present. I'm not sure everybody is, but. My name is kathy. All. It's kathyhoell, and I serve as one of the co-chairs of the olmstead advisory Committee. I want to begin by thanking Senator rodney, who's now not here. And I also want to thank disability rights of Nebraska for helping with a recent survey that you have all received copies of our. The first that's been out. You start hearing from some of the working group. There's going to be more. And they will talk about the progress that they have made. But it's important to remember all supreme court. Olmstead decision was and remains a binding precedent. The americans with disabilities act is section five of the rehabilitation act also remained law.

Senator Brian Hardinlegislator

So while the current federal administration has chosen to take a narrower view that does not eliminate the responsibility and nebraskans had recognized the importance of supporting people with disabilities, disabilities and families. And since 1981, nine years before the first americans with disabilities act was passed. The unicameral past LB 389, the disabled persons act and family support act funding in that bill, described the state's commitment to supporting disabled people, strengthen families, and promoting independent living. What's important. To realize is that disability does not discriminate any person from any income, ethnicity or location can enter this minority group at any time. A prime example is me. I was 27 years old, a practicing registered nurse, a wife of an individual on the air force, and the mother of a two year old son, and we were living in madrid, spain. I developed new symptoms. However, they didn't improve, but the end of a week I was in the hospital. They did multiple tests, couldn't find out what was wrong with me. I continued. I was moved to the intensive care unit. I probably shared by my first clue. Anyway, I went to bed one night and I woke up two weeks later and I was paralyzed from the neck down and on a ventilator. So that's why I'm so adamant about olmstead, why I am a second class citizen overnight, essentially overnight for me. I spent two years in a hospital and in nursing homes. Then food is being put to bed at 4:00 at night or in the afternoon. However you want to look at it. I on their schedule and yeah, everything was done to meet the staffing needs, not to meet my needs. Thankfully, my family remained intact and I have. I have benefits and resources that allowed me to continue living at home, but not everybody is as lucky as I am. Recently, disability rights and I conducted a survey that went out to people with disability, family members, friends and allies asking people how they thought Nebraska was doing on olmsted. I have sent the full 98 page copy of the survey and all the responses to each of you and. But you did receive today. Highlighted version that we developed of just some of the responses, because I thought it was so important. I thought one of the survey responses. Buried my. Is that I need to focus on the needs to invest in community based services in a way that makes true choice and community integration possible. It is not enough to say that individuals have a choice to live in the community. If the services workforce funding housing, transportation, and other supports needed to make this possible, I'm not available. This response reflects a broader concern. Nebraska has invested substantial resources and institutions. Wheelock failing to provide supports and services necessary for a strong home and community based system. This includes a lack of oversight into what dhhs does.

Senator Brian Hardinlegislator

Dhhs establishes public community funding, sets provider rates, has oversight of quality and appeals. If there's an appeal, it goes to a dhhs. This is like asking the fox to guard the chicken house. I'm sorry. It just doesn't work. We do not have an adequate system doing. Sure, the health and safety of an individual in our long term care system. Nor do we have true person centered system because the chair of the chancellor Committee recently moved. I'm just gonna briefly touch on a few of the things that I know are. Transportation is. Is a clear, programmatically accessible paratransit services water available in some like omaha. Again, some of the smaller suburb towns and they're available on grand island. Kearney. But when you get to the really rural areas, it's not available. And it has to be booked anywhere from 24 to a week and 24 hours to weaken advance. So I know, for example, here in lincoln, it is a week. Omaha is 24 hours. Has a little bit better anyway. We do not require taxi, uber or lift to be accessible. And I have had a lot of issues over there and I am not going to bore you with the details right now. There is a small percentage that do decide to become be accessible. I know a friend of mine has been working with uber and she has an accessible van, so it makes it easier. But there's lack of accessible transportation makes it impossible for people to work because transit paratransit systems are limited by city or county line. So for example, this happened a few years ago off air force base tried to set up a employment process with a program in omaha, and it had to be canceled because they could not find ways to get those people to work, because you have to cross county line. And that's unacceptable, in my opinion. And the other thing, I just want to tell you one quick story about a. An individual who lives in omaha, who had to was doing an internship with a company in orr, a nonprofit in lincoln, and they had to have a meeting with her in person. So to arrange transportation, it cost $700 to go from omaha to lincoln. Thankfully, they. Paid $700. But then they had their meeting with the transportation company was supposed to pick her up at the end of the business day. If I could talk and they didn't show, she ended up sitting on the street through 7:00 in the evening before I finally showed up. The department of transportation has worked diligently on the things that they're responsible for, like their website, making their public meeting successful, but they have not. There's some fixes that are going to be needed because with the chance for the chance you give your first love, this is the best. They cost thousands of dollars to go across the state.

Senator Brian Hardinlegislator

If you don't have your own van or whatever. In 2025, LR 251 was introduced to look at the state transportation system. Excuse me. However, this was introduced into the body a but the chair of the telecommunication and transportation Committee refused to have a hearing on it. Nebraska has a responsibility to make sure our state is constantly working to provide home and community based services to our citizens, to those that currently have disability, and to those that may not have yet, because the national average said one out of four people will become disabled in this country. According to the developmental disability that. Disability is a normal part of the human experience. No one should have to leave their home or community just to get service or get stuck in a nursing home or hospital with no way out. I have gone through four government governor's terms trying to get homes and interiors because in most states, the governors are the ones that push this forward. But john. Hansen. Hendrix. And governor palin will not do it. So I want to thank the unicameral for eventually seeing the light and introducing the bill and passing the bill. Eric, this valley should not be political. It's a bipartisan issue. And I call on the legislation to prove that people with disabilities matter. And if they're any questions, I'd be glad to answer them. Thank you, mrs. Holt. Questions. Thank you, mr. Chairman. And thank you, ma'am, for this really inspiring testimony. But it tells life like it is, and I appreciate that. And that's what I tried to do, is to focus on what people are really facing out there versus all the pretty words that you're getting from everybody else. Yes. And we are. We're just one breath away from dying. We're just one step away from being disabled ourselves. And that is something that we can never forego is the compassion and the understanding. Our society is only as strong as the effort that we put into taking care of our weakest citizens, and all of us together, taking care of one another definitely can make this state a better state and better place for all of our citizens. And you missed it, I did, thank you. Yes you did. Yes you did. But I sorry, I see you and I have a conversation, so I appreciate that. But this is good information. Hearing about the $700 to get from omaha to lincoln and then not getting picked up. These are the realities of what we deal with. And sometimes if you have everything that you need, we tend to forget about those who may have lack or not have a need. So we want to keep our focus on that. So I thank you for what you've shared.

Senator Brian Hardinlegislator

And as you work with the Committee, we've heard a lot of testimonies today, which I appreciate, but I'd like to see as we come together and continue to put good policies and procedures and practices in place, so we can't continue to live with one another. So I just want to make a comment on that. Thank you. Sarah, did you have a question? Okay. Seeing no others. Thank you. We appreciate it. Okay. And you're going to hear from me again. This room figure. Geoffrey thomas will be next. Welcome. Thank you. Hang on one second. You know of the reader age reader glasses. Okay, I think I'm ready.

Jodi Thomastestifier

My name is jodi thomas. I want to thank you, chairman and members of the urban affairs and health and human services Committee. My name is jodi thomas jay omithomas, and I am the chair of the community sports workgroup for the Nebraska olmstead plan. I'll be direct. Community supports is not making the progress it should. And it's not for lack of trying. It is because the people with the authority and responsibility to move this work forward are not at our table. The housing work group has john turner, as you heard earlier, who is. Professional responsibilities align with many of that workgroup's goals. Transportation has providers and. Jodi gibson from the Nebraska department of transportation employment has, as you heard, lindy foley. And they're doing a great job. Community supports does not have regular participation from the key partners named in the olmstead plan. I did hand out our portion of the olmstead goal. So you didn't have to read all the whole thing if you just wanted to know about us. But and on that, our goal one, you can see that our key partners are mainly state state departments, the department of behavioral health, the department of medicaid, long term care, various things like that, certified community behavioral health clinics, cbcs are one of our community partners, but they're located throughout Nebraska and have a range of services. Are we expected to contact every one of them to try and find a person that can represent them? The managed care organizations are also named as our key partners. I have personally asked two of them more than once to send a representative. No one has attended or responded. I have repeatedly asked for the names of people responsible for these areas. I have sent emails and received no response. Some state contacts respond only when I include another olmstead Committee chair with mine. I'm a volunteer chair that should. That should not be how this works, but community support goals are broad. They include transitions between health care and adult services, access to home and community based services coordinator. Thank you. My printer printed on both sides. State systems. The direct support workforce, data collection, communication, access and self-advocacy. We cannot address goals that broad without the state agencies and other organizations responsible for those systems to participate in the work. I am asking these committees to hold dhs this Committee. Sorry to hold dhhs accountable for implementing the community supports portion of the olmstead plan. Require the agencies divisions. Other key partners named in the plan to attend our meetings regularly. Identify who is responsible for each activity, respond to our questions, and report measurable progress until the reasonable partners are at the table. The responsible partners. This workgroup cannot do the job Nebraska has asked it to do. Thank you, and I are happy to answer any of your questions. Thank you. Questions. Senator ramsey. Thank you so much, gentlemen.

Jodi Thomastestifier

Thank you so much for your testimony. I'm just trying to get my hands wrapped around how we can have the vacancies in the areas that are needed to participate and how, with your communication, outreach, nonresponsiveness. And we haven't been able to cover that gap. I would like to know that too. We you know, as you can see on our goals, they're just big. Yeah. I mean, it states the department of medicaid, long term care. That's a huge division. Who in there can help us with goal one? Behavioral health. We have had people. Jessica mcdivitt was wonderful. She did come and taught us a lot about the system, but it but she wasn't the person that could give me the data that we needed. And it just has been very difficult to, you know, and hhs is saying they can't make the department of behavioral health come to the meeting, or they can't make, you know, some other division come to the meeting. But supposedly, I mean, I've been with this project from the beginning and everybody was there. Everybody knew they were going to end up in the olmstead plan. But yet we don't have any identified person to give us the data we need or give us the information that we can even do anything with it. Does that make sense? It makes all the sense you're going to have to how to resolve it. And if it's statutory type that we need to handle and maybe an area, we could go back and look. At it well. And we were meeting monthly, but we weren't getting any. There just wasn't any point, you know, because our goals are big and they're broad and they're long. And so we meet quarterly now. Okay. But so is it something that it needs to be broken down into sub units or something of that nature to make it more manageable and maybe encourage participation? I think at least giving, getting someone, someone has to encourage participation by the key partners. You know, one of our, I think it's goal three, the biggest partner is the commission for the deaf and hard of hearing. And it's very centered. We had originally modified that goal to include a communication for everyone, not just people who are deaf and. And it didn't get. So our Committee is hoping that at the three year point we can modify that goal, but we haven't been able to. We did get. I will say kim davis did give us some information about the number of licensed interpreters in the state. So we did get that. But. All right. Thank you, Senator. Yeah. Thank you chairman. How many people are make up your Committee that you chair? Our Committee? Well, we have about 20 people listed on our Committee as that receive the notifications of the meetings, the minutes and things like that.

Jodi Thomastestifier

I have to admit, I wasn't great about getting about doing minutes for a while, but we have kind of gotten into a system. But there's probably. 6 to 10 that come regularly. You know, people that they see that we're not accomplishing anything. They don't want to take an hour out of their day to just come and find out. We don't know anything more than we did before. That's also why we went to a quarterly meeting. And did the meetings. Are they in one location like in. We're all virtual. It's the same. We're the third wednesday of every month at 11 a.m. Okay, so really, there's no reason people can't attend if it's a zoom meeting, right? Yeah. Yeah. Well, you know, I mean, they all have jobs too, so but yeah, but we make it pretty easy. Yeah. Yeah. Well, I think the input from everybody is important, like you say, to, to complete the goals that you wanted to write. And do you have bylaws or something that regulates your. No. Okay. All right. We do have a lot of individuals with lived experience on our Committee because it's community support. So, you know, it brings a lot of people, but we don't have the representation from the state departments that we need. Okay. And then once you're like for your meetings and does that go back to the full Committee, then eventually. We yeah, all of the Committee chairs report at the advisory council. Yeah. Is that something that comes up though? I'm guessing maybe that happens with other committees. Oh, I bring it up every time. Okay. Yeah. All right. Yes. Thank you. Any other questions, Senator campbell? Thank you. Chairman, thanks for being here. You mentioned that you don't get a response from the state agencies unless you cc another Committee chair does. Kirsten larsen? Yes. Are they then participating in some of these other committees and just not. Kathy's on our Committee? Kristen is on our Committee when she when she can. I mean, the folks who you're not getting participation from. Oh. No, they're not participating in other committees. Oh, wait, I'm sorry. Ask me that again. I'm just. So the folks who are not participating that you would like to get participating in community supports, are they participating in some of the other committees? Well, and I have to say, voc rehab does come to our community supports. Lindy was great about finding someone who could come to all of our meetings, and they come and they report to us what happens at the employment Committee. That's the only one we have somebody from the education Committee. So we have from other work groups, but they're not the people that can give me the answers. They're not the people that can bring us information. I see and do.

Jodi Thomastestifier

I mean, are there I guess I'm trying to understand if the state agencies that you need to participate are participating in some other capacity, other places. I don't I don't think that other work groups have like behavioral health on them. At least not in the ones that I sit on. And is one of the problems. Yeah. Sorry. The department of transportation is very involved. So that state agency is involved in the transportation Committee. If I'm just brainstorming, this is just a fact finding mission. Of course, if we were to just require that they make designate a point person who's responsible to communicate, is that would that be thinking? Because you sound like you said, you don't even know who you talk to over there, right? I don't, I don't have a name to reach out to. I did get a name, matt ahearn, who used to be a director of medicaid, long term care. He did come and that was very helpful. And we got some things done. But then he left and I did reach out to his predecessor and he I haven't heard from him. So I don't know. And I'm looking through the thing you gave us kind of a list of the key partners in separate parts here is would it be possible for us just to get a list of just who you need to need to find a way to get involved? Yeah, sure. Yeah, I can send that to you. Okay. Thanks. Yeah. Key partners are under every goal. Also. Not all of them are the ones that we're talking about. Is that right? I was just talking about community supports, right? Yeah. But I mean, all of the key partners listed here are not the folks we're trying to arm twist to get involved. Most of them are are needing arm testing. Gotcha. Outside of vocational rehabilitation and education. Yes. Got it. All right. Thank you. Other questions? Seeing none. Thank you. Do that. Thank you. If I might ask for your indulgence. I have some water here. My. Take this medication. It dries out my mouth real fast. So I'm trying to drink a little bit. I have a mint if you. Need one. Well. You know, I thought that something can't be real. No. It's real. Okay. Thank you. Good morning, Senator hardin and members of the Committee. For the record, my name is brad behrens. Bradmeurrens, and I am the public policy director at disability rights Nebraska. The designated. We are the designated protection and advocacy organization for persons here in Nebraska. Our main charge is to advocate for and protect the civil rights of persons with disabilities here in Nebraska. I want to thank you for the opportunity to speak to you today about Nebraska's olmstead plan and the rights of people with disabilities to live in the community. The 1999 us supreme court decision olmstead vlc was a landmark decision.

Jodi Thomastestifier

It affirmed the right of people with disabilities to live and thrive in their communities, instead of being hidden away, warehoused in massive cindy institutions. As is so much the history and mistreatment of people with disabilities throughout throughout history, I want to. I also want to thank Senator rountree and unicameral for calling this hearing as this right is under attack in june of 26, the us department of justice issued a public opinion warning that the department did not believe in the integration mandate and did not interpret olmstead in the way that it has been for over 30 some years. And in july, it announced that it would not be enforcing this right. The department's slip, opinion and memorandum, as cathy had said earlier, are not legally binding. However, it is a clear and dangerous signal that the administration will not enforce the integration mandate or support programs that are essential to community living. In the wake of Congress's enactment of h.r. One, home and community based services are already in the crosshairs in every state. As a result, people with disabilities will be faced fewer services, reduced independence, and increased institutionalization. Combined with the presidential executive order 14321 call for institutionalizing people who are homeless because it is assumed that they all have a serious and persistent mental illness. The unsuccessful proposal to reduce compensated hours for caregiving under the Nebraska medicaid waivers, recent statements, recent statements by folks that say Nebraska will still advocate for hcbs services but will not hesitate to promote institutions. The importance of Nebraska's commitment to fulfill the obligation and promise of olmstead and its decision, and to enable Nebraska disabilities to actualize their right to live in the community, has never been more precarious or urgent. I sense more and more the responsibility to ensure this right will increasingly be left to the states to handle. One of my mentors many years ago had a saying that that is pertinent to this discussion today, and that is rights have responsibilities. In order to exercise your rights, there is a responsibility for the state or the administration to provide the means, methods and mechanisms to exercise these rights. The message from the us department of justice's decision to erase the established right of people with disabilities, to live in their communities, and to be free from being institutionalized unnecessarily or against their will, leaves disabled nebraskans with a civil right, but nothing to enforce that right. Essentially the same thing as not having the right at all, thus having a robust, comprehensive and collaborative olmstead plan will be critical for Nebraska policymakers to maintain their focus, direction, momentum, and fidelity to the spirit of olmstead. Having a right to live where one chooses is fundamental, with the same gravitas as freedom of speech, due process rights and equal protection, state leadership and commitments to provide sufficient resources to implement Nebraska's olmstead plan will be instrumental.

Jodi Thomastestifier

The federal government passed the 21st century road to housing act a few months ago, and this will provide funding for states and local governments to build affordable housing and to modify housing so that it is accessible to persons with disabilities. Here in Nebraska, we are eager to work with other organizations and stakeholders to capitalize on this opportunity. The olmstead plan will be helpful to identify projects that could benefit from these funds. I thank you for your time and attention today. I would be happy to answer any questions you have. Thank you. Questions. Thank you so much, mr. Chairman. Thank you, mr. Mayor, for your testimony today and a passionate testimony since the department of justice decision or their statement came out, how have you have you felt any differences in temperature? When I say differences in temperature, maybe a propensity to not enforce homestead, but just to relax and to see an erosion of potential protections? I think it's coming like, like you said earlier, you know, the olmstead decision like, like you said earlier, you know, the olmstead decision still is, is black letter law. It's still precedent and it still is in effect. It hasn't been overturned or overruled. However, I am very leery if the that the government will not enforce the rights. It will not do. And so basically, it's not having not having one at all. So if you can't if you can't enforce it, it's kind of a roundabout way of, well, we don't we don't have to erase the president. We can just say we're not we're not going to enforce it. So it achieves the same end. I haven't seen anything in particular enacted that way, but I think it's coming. Okay. All right. And then second, just a follow up to that. The 21st century road to housing act that provides additional funding for modifications in the more affordable, accessible housing. We heard good housing testimony earlier today. Things are in place. And how do you see this as quickly? Because the issue has been timeliness. But does this enhance the or cut down on that period of being able to get funding out and getting accessible, affordable housing to the people who need it? Yeah, I think the olmstead plan is we have it now will be instrumental in, like I said, like I said, identifying projects that would be, you know, could be funded by this federal legislation, the federal funds that come down to the state and localities. I think it will play. I think it will play an important role in meshing with the funds that do come down. And the purposes for those the for example, modifying houses, making them accessible, building affordable and accessible housing. It also talks about funding a study of accessible housing in persons with disabilities in the across the nation.

Jodi Thomastestifier

So I think the olmstead plan, in conjunction with the road to housing will play, will be a synergistic effect and will be instrumental in in developing those affordable, accessible housing. And then lastly, and the last legislation, I proposed a bill dealing with our disability housing a 5% for physical disabilities and a 2% for visual hearing impaired. Do you think that's reasonable? Does it put other restrictions out? Should there be more? Should be less. I mean, you're dealing with multi multiple units. Well you know I don't I don't know. I don't have a specific number for a percentage. But but I do believe that would be a good start. The 5% as we as you had introduced originally your bill, you know, and I think that I think that that this funding, if we can get stakeholders on the table and develop a package to apply for and receive these funds will go will go very far in, in creating those affordable and accessible houses that people with disabilities need. It's a it's a severe shortage. And I remember my friend vince, who has a disability and he was homeless for a while and he, he literally had to hide behind dumpsters in the alley so he wouldn't get mugged on streets of lincoln, Nebraska. I think ketv did a story on him and and followed him around and trying to find the dumpster that they can he can hide behind so he can get some sleep in his chair overnight. It was, it was it was a hair raising story. And what they said back then was that, you know, homeless shelters are not usually accessible to persons who have a mobility impairment or disability. So there he couldn't go to the homeless shelters and he couldn't have he'd never have have housing. So he's basically living on the streets for a while until he could get finally get some affordable, affordable and accessible housing, which took a while. Right. Thank you so much. I appreciate that. Other questions. Seeing none. Thank you. Sure. Mary phillips. Hello. Good morning. Good morning senators. My name is mary phillips. That's maryphillips. I am here to testify as the co-chair of the education work group from the olmstead advisory Committee to share the progress of our education workgroup. The education workgroup is composed of both members and nonmembers of the olmstead Committee. The membership roster is attached to my testimony today. I represent the arc of Nebraska on the advisory council, and I am also a retired director of special education for an educational service unit. Esu six, by the way, and most importantly, I'm a parent with lived experience having a 38 year old daughter with developmental disabilities. The vision of the education workgroup is that nebraskans with disabilities have equitable access to high quality educational opportunities that prepare them for meaningful participation in their communities.

Jodi Thomastestifier

We know that education is a fundamental right and a cornerstone of lifelong learning, independence and engagement. It creates opportunities for students with disabilities to learn alongside peers. Foster social development, reduces stigma. It also helps ensure that students are valued members of their school communities, and they're prepared to contribute meaningfully to society. Nebraska is committed to ensuring that every student has access to a high quality education and supports their full potential. The goals of our Committee are listed there for you, and you'll notice the first two are bolded, because those are the two goals that we're actually working on this year. In our subgroup, we would like to strengthen the staffing capacity and equitable access to educational support statewide with targeted strategies for the rural schools. The esu that I supported in special education were 16 rural districts, and I can tell you that there is a discrepancy in resources with the rural schools and the urban schools. I also spent 25 years in an urban school in various capacities as a special ed, a building leader, a district leader. And so I see that there are different resources available depending on where you live. And the third goal is to increase parental engagement and knowledge of resources beyond schools. And we plan to tackle that one in our in our next series. So to reach our goals, the education workgroup is hosting an education leaders roundtable on october 16th in omaha. And we want to discuss the current challenges and find solutions to the special ed workforce shortage facing Nebraska. Because without teachers and educators, we're not going to help these students in the ways that I described earlier. We seek resources. We are seeking representation from the key stakeholders in in state and higher education, policy training and service providers. And the rationale really is to address the negative trend line that we have been following in the special education workforce in Nebraska today. The data provided by the Nebraska department of ed, who are very powerful partners with us on our workgroup, are listed there for you. But the one that we're most concerned about now is still in 2526. We have a 30% vacancy rate in special education and unfilled positions. That is a bit of an improvement from the 208 the year prior, but it's still 30% is still too high. A number of missing special educators across the state. We have had some difficulties finding partners from education agencies who have the capacity to help us in our planning, and to help us get information and to share strategies with us. Because of the staffing shortages that we are actually concerned about. So they don't have the time to come and be a part of our monthly Committee and to work with us for just that reason. So our Committee participation is not continuous. People come when they can, and we miss that continuity of having ongoing folks.

Jodi Thomastestifier

We just very recently received the complete list that we needed of all the esu, all the esu special ed directors that we were inviting to our workforce roundtable and a listing of all of the state college deans. We just recently received that. We've been asking for it for several, several weeks, a couple of months now. So another barrier that we have is that obviously there's no funding for olmsted. And so we're planning a round table with $0. So we're thankful for having partners like monroe meyer, who are who are able to help us out with locations and, and with supporting this endeavor. We know that bringing highly qualified stakeholders together will help contribute to a plan to really help us with recruitment, with training, with retention, to meet these workforce strategies that we're facing in Nebraska. And it is it's not a singular issue in a certain part of the state. It is across Nebraska. We're these workforce shortages, and we're not just talking special ed teachers either. We're also talking about related services staff, paraeducators, ots, pt speech pathologists, nurses, all the folks that support these students to have meaningful educational opportunities. So I'm open to questions. Thank you for inviting me. Questions. Senator. Thank you. Senator. I have a few questions. Esu six. Where is that? Milford. Milford. Okay. And then when we talk about these shortages, is it salaries? Is it the work? Because it's it's. So that's really what the roundtable's job is to do is to help us determine why are we not getting candidates, teacher candidates coming into these colleges? What, where, what retention strategies are being implemented right now? Where are we finding shortfalls? We don't know the answers to these. So in light of not being able to have a robust Committee meeting on a regular basis, we thought bringing people together in a round table might help us understand some of these barriers. So what type of funding are you looking for from where new and all those things. Oh, well, you know where I'm looking for need to increase the the amount of money that comes into special education rates. We, I mean, we can start talking about that, but I, I personally think it would my professional opinion here would be it would be helpful to have some type of program for teachers or for students coming into the teaching field, whether it's student loan forgiveness or whether it's some kind of a incentive pay stipend, something. And I, I know we're in a tight budget year, but teachers in Nebraska are 45th paid lowest in the country. And yet we have some of the highest outcomes for graduations and and that kind of thing. But my focus truly is on special education.

Jodi Thomastestifier

And when you hear about how interrelated this this workgroup is with all the other workgroups in the olmsted, if we don't put out individuals who have meaningful work experiences and opportunities, then that's going to contribute greatly to waiver services because they're not out in the workforce, even with supported employment, they're certainly not doing any customized employment opportunities because they haven't learned how to do that because they're being segregated and warehoused in schools versus in a in a universal design of learning, where all the students are, are learned in an inclusive setting. All of this takes people, right. It all of this takes teachers and people to support those students. And that's what's missing. Do you think the universities aren't targeting that? I will find out at the round table. Pardon? We will find out at the round table. Thank you. Yeah. Sen. Thank you chairman. And I know you know all school districts are different. So you've got you know, your rural schools and smaller schools. I'm guessing that probably a lot of problems with getting special ed teachers. The issues do a tremendous job of meeting those needs. You know, when I when I was at esu six, prior to my retirement, we provided all types of related services to all of our 16 districts. Most districts hired their own special ed teachers themselves, but all the related services, psychologists, mental health supports all of those types of things for special education came through the issues that continues to happen. We do have a few single district issues with lincoln and omaha, and they they use their esu funds a little differently. Each of them use them differently as well. But out in the general esu communities, special education is is very much needed to support those rural districts. And so when you're when you're committed to, you work directly with the esu. Orr department of education, or is it through the sioux or through or maybe all three school districts included? We work directly with the superintendents in the school districts. I worked in collaboration with the department of education, and the issues themselves are a tight knit group that we share resources and training materials and all kinds of things. Okay. And then one other question, and it's kind of related and maybe you addressed it, I don't remember in your testimony, but I know one of the working Committee for housing had trouble getting everybody to come to the meeting. Do you face some of those things? We do because they're working and there's a workforce shortage, and there's not subs for them to be released to come. The department of ed, while the director of of special education in Nebraska hasn't been able to attend, she sends the transition specialist and she's valuable and she's actually helped us get some of the data that we've been working off of.

Jodi Thomastestifier

So we do have a strong partner with the department of ed, but we we would like to see more partnerships with the higher ed community. We would like to see more partnerships even with the esu. And those are areas where it's just hard to get them to come because they're already working, you know, long jobs. Thank you. Yeah. Any other questions, Senator catherine? Thank you chair. Thanks for being here. Follow up on Senator. Quick question about. So in terms of getting folks to attend, you said they don't have they're not set up to be released to come. Does that mean they have to, like, take time off to come as opposed to getting paid to go? I'm sure they're paid to come. If they came, right, this would be underneath under their umbrella of, of work experience. But it's more of we, we don't have any stipend to come. We don't offer any mileage to come. So they would have, they would be at the mercy of their place of employment if they did come. But as jodi said, our meetings are virtual anyway, so we're not asking people to come to us except for the roundtable. But we also will offer that virtual. Thank you. Yes. Other questions? Yes, Senator. Thank you. Chairman. Thank you so much for your testimony and your lived experience and professional experience. And you said that as an equities and resources that are urban and rural areas. And I know that's pretty broad. How do we get those resources? The the better resources out to the minimal areas and so forth. Those areas want those resources. Is there any push back on certain things as far as resources are concerned? The resources are many of the resources come directly from the school districts themselves, and some of those school districts just don't have the funds. I've had superintendents tell me, yes, I know I need a mental health specialist in my district, but second grade classroom desks are 20 years old, you know, or my cinder track needs replaced. I hear those things. And then that tells me the priorities for that community are not a mental health professional in the school system. Thank you. That clarifies. Yeah, that's just reality. It is. Thank you. Yes. Another question. Seeing none. Thank you. We appreciate you. You're very welcome. Before I go, I just would like to also recognize and thank my spouse, major dorn phillips, for attending. This is his first hearing and he came today to be my biggest cheerleader. Thank you. So this is this has. Been atypical. This hearing has been atypical for the for the Legislature. We don't normally have two committees come together, whether it's during the session or during the interim. And so this has been an enjoyable thing, I think, for us to be a part of. So I was just going to ask you, vic, would you mind just.

Jodi Thomastestifier

I mean, is this kind of what you envisioned when, when you thought about this because you and I sit in the front row and we, we kind of well, we ignore everybody behind us and we talk and so forth. And I mean, was this kind of what you were envisioning? Chairman hardin yes, this is exactly what I envisioned. And it to me, this has disproven the fact that we come together for a hearing and then nothing happens. I've taken a lot of notes, and there's been a lot of things that we saw maybe called inefficiencies or deficiencies, things that need to be raised and gaps that need to be filled. So that's what this testimony today has given us that jointly. So I've taken a lot of notes, and I think there's a lot of things that when the report is done that we can move forward, follow up, make sure we can get people to the meetings that need to be there. And the funding issue that was just raised, take a look at that, too. So I don't think it'll just be a hearing for the day. And it drops something that we can go forward with. So thank you so much. I appreciate it. Thank you. So thank thanks to all of you for making the effort and the time to come out today and make this happen. So appreciate it very much. That concludes our hearing today. All right. We'll have a ten minute break and then we'll be back at it. They have the friendly gene. Absolutely good conversation there. Just that way. Thanks for being here today. And welcome to the health and human services Committee.

Senator Brian Hardinlegislator

I'm Senator brian hardin. I represent legislative district 48 and serve as chair of the Committee. I'll start by having members of the Committee introduce themselves, starting with way over here with Senator ballard. Beau ballard, district 21, northwest lincoln and northern lancaster county. Dan quick, district 35, grand island. Senator merv riepe is here and he will be back shortly. So assisting the Committee today is our research analyst, bryson bartels, as well as Committee clerks corey bierbaum and rebecca bartunek. And, joel, you're still here. You decided to stay. That's good. We keep trying to discourage these young people, but they stay in there for more. Today's hearing will be invited testimony only if you've been invited to testify, please fill out a green testifier sheet located at the side of the room and that to the page when you come up to testify, written material may be distributed to the Committee members as exhibits only while testimony is being offered. Please have at least a dozen copies. Hand them to the page for distribution when you come up to testify. We do not accept oversize exhibits, cds, thumb drives, or other electronic exhibits as they cannot be transcribed. To better facilitate today's hearing, I ask that you abide by the following procedures. Please silence your cell phone and when you come to testify, please state and spell your first and last name for the record. Before you testify, we'll be using a three minute light system. Or will we be using a three minute light system? We'll be. We'll be using a verbal system. So you'll just have to trust us on that one. Hey, we want a system, he tells us. Okay, so we're we're all friends here. But I might say, help us out, help us out. And so questions from the Committee may follow. And with that, Senator rountree. Good morning, chair hardin and members of the health and human services Committee. My name is victor rountree. Victorrountree, and I represent district three, which is made up of bellevue and papillion. Today I'm here to introduce LR 404 to study the changes that have been implemented by dhhs to the various home and community based services waivers in our state, as well as other issues facing the disability community. LR 404 has a broad reach, which is important to fully encompass the different stresses on our hcbs system. The resolution lists eligibility requirements and caps placed on waivers. Assessment tools used by the department to determine needs of those with developmental disabilities. Entering into a 1634 agreement with social security, and the use of algorithm based assessments as topics for research. Each of these topics could be a separate hearing on their own, so I ask that we take the time we need today to discuss the serious impacts families in our state are facing, and consider how we can help them move forward.

Senator Brian Hardinlegislator

First, I would like to address the interrai assessment model implemented by dhhs to assess the needs of those with developmental disabilities. I'm sure many of you have heard from constituents about the changes in services provided. Now that the interrai is being used, the most recent data I have is seen from july of this year. Between initial assessments and reviews, there have been 5594 uses of the assessment. Of those assessments, 974 individuals have been reduced. At least one funding tier, or roughly 17% of cases, have resulted in loss of support. It is important to remember that these tier changes can have large price tags. We have heard that dropping a single tier can represent nearly $100,000 difference in services, provided. There is an appeal process for families who feel that their funding changes are not appropriate to their needs. However, this appeal process is being described as lacking transparency and feeling as though there is a predetermined outcome. And the previous year there have been 584 appeals and of those 584, only four decisions have been reversed. I believe it is important that a third party, without any stakes in the decisions, should be used to conduct these appeals. The interrai assessment has had a flawed rollout in our state. We have heard many firsthand accounts of individuals who have had the model used for their assessment and the flaws during their assessment process. There have been individuals who are nonverbal, being marked down as being unable to speak. Individuals who have specific care needs that are being left off, their tests, and even assessments being done without ever seeing the individual being assessed. There are industry professionals behind me who can testify more in depth to the technical aspects of the anti-ra and where they feel the flaws are. They can discuss the case mix index and what it means. And for the families in our states, I encourage the Committee to dig into what this test is meant to be used for and what our state is doing with it. The department has made the decision to investigate the use of the interrai, and currently has a request out for independent investigators. The department initially announced that they had contracted with the firm, known as a&m, to do the evaluation. Then, after concerns were brought forward, the department moved to a competitive bidding process to find an evaluator. Many advocates have asked that while this process is ongoing, that the state pauses use of the anterior test, saying that there is enough concern in the validity of the test to hire an independent investigator, there should be a pause to allow for the correct methods to be identified and implemented. Aside from the assessment models, our state has also recently implemented changes to the home and community based service waivers.

Senator Brian Hardinlegislator

The hcbs waives included the aged and disabled waiver, the development of disability, adult day waiver, the comprehensive development of disabilities waiver, the traumatic brain injury waiver, and the family support waiver. These waivers serve 17,644 people in 2025. July 1st. This year, the department implemented amendments to three of the waivers change in service limits, billing practices and coverage services. I've included copies of a memo from our amazing legislative research office that describes these changes and death. I'll briefly cover the changes, but again would encourage you to ask questions of the subject matter experts behind me for more specific information. First, the department ended its contract with the league of human dignity, which calls the shift in service coordination and case management. Dhhs has assigned service coordinators to cases that were formerly managed by the league. These changes were done as a cost saving measure, but causes concerns about reduced hours for patient and overworking department staff. Next, the department established limits on the amount waiver services that can be authorized for participants of the a d waiver. The limit is 150% of the average annual cost of nursing facility care, or a threshold of $138,657. If an individual's needs exceed this amount, they can apply for an exception to the limit. The department has also made changes to billing and reimbursement methods for ad waiver providers. Dhhs replaced negotiated reimbursements for a number of ad and tbi waiver services with a maximum reimbursement rates. Dhhs claims this is part of compliance with federal medicaid payment transparency requirements. Individuals behind me may be able to explain from a service provider perspective what the changes in reimbursement mean for their businesses and for patient care. In regards to the development of disability waivers, it is important to remember that the state in recent years underwent the process of ending the waitlist for services. In 2024, there were 2704 individuals on the waitlist for developmental disability services. As of 2025, there was officially no longer waitlist through expanding access through other waivers. This process in and of itself has large impacts for what services look like for families. Effective july 1st, the department restructured dd waiver services, splitting residential habilitation into separate services and adding other services. The department also implemented the electronic visit verification process in 2025, which has caused issues for service providers. I've heard stories of service providers who are working with a patient but cannot do certain activities due to the complications of the system. For instance, a family home may be recognized as the location for the app, but the family barn nearby cannot be registered for the building. Verification or service provider would have to change the plan activities for the day and take the client to a store or other space that has not was not originally planned. They are unable to register those hours in the system again.

Senator Brian Hardinlegislator

The service providers behind me may be able to speak more technically to the challenges of the system. During this last legislative session, the body moved approved as Senator michaela kavanagh's LB 958 48 to 1, with Senator riepe as the lone no vote. This bill required dhhs to, number one implement clinical interview and training for assessors using the interrai, provide clear explanations of assessments, results, service tier and eligibility determinations and appeal rights, and how services based on individualized assessments of medical necessity, functional needs, and health and safety. The bill also required supervisory review of determinations that reduce an individual's service, tier hours or service provisions. LB 958 also required reports to the Legislature on implementation. Senator cavanaugh has pointed out that the reports provided by the department do not paint a clear picture of why these reductions have occurred under the interrai test, and that gaps still remain. I've included for you Senator kavanagh's letter to the department requesting additional information, as well as her follow up nearly a month after her initial request. This information is important to fully understand the decisions that have been made and the life altering impacts they have for families in our state. I typically like to get my Committee openings brief, and to allow the subject matter experts to do the talking, but I thought it was important today to lay out the groundwork for what we are discussing. And these changes in the state's waiver services are not just small tweaks here or there. These changes mean everything for the families with disabilities. If you or your child do not have access to disability services, you cannot live your life to the fullest. When a piece of paper changes and a family loses hundreds of thousands of dollars of support, they can do nothing but feel abandoned by a system designed to protect them. I appreciate the Committee's dedication to protecting those with disabilities in our state. We have a duty to represent our constituents and to ensure that they are receiving adequate care. Every district, all of our districts, have someone feeling the impacts of these changes. My hope is that after today, we will have a clear understanding of our path forward as a state. I would like to thank those behind me who are here to testify and to acknowledge those watching online who may be going through these challenges at home. As the Legislature convenes in january, we will have several large issues in front of us, but we cannot allow those with disabilities to fall by the wayside. So thank you for your time today. And with that, I will be able to answer or happy to answer any question I may have, but I may also defer to the experts that are behind me, the ones that are working in the field. Thank you, chair. Questions for Senator rountree.

Senator Brian Hardinlegislator

It looks like they are going to wait and then make it hard for you later. That would be fine. Thank you. Sir. I appreciate it. You will be sticking around. I'm here for the day. Yes. Thank you. Director tony green. Welcome back. Good morning, chairman and members of the health and human services Committee. My name is tony green, tonygreen, and I am the director for the division of disability and aging in the department of health and human services. I appreciate the opportunity to discuss the department's use of the interrai assessment and the transition from the inventory for client and agency planning, more commonly known as the icap. I want to emphasize the dhhs supports the continued use of the nri assessment as the foundation for assessing the needs of participants on our dd waivers. The transition to interrai represents an important modernization of Nebraska's assessment process, and provides the department with better information to understand an individual's needs, strengths, risks and available supports. The interrai system is more comprehensive and validated. Assessment approach. It was developed specifically to provide a broader, more holistic understanding of an individual's functioning health strengths. Risk preferences available available support and support needs. Rather than looking primarily at isolated functional limitations, interrai considers the individual in the context of their overall health and daily life. That distinction is important when the department is making decisions about the intensity of services and support an individual may need. The goal is not simply to replace one assessment with a with another. The goal is to gain a better, more complete understanding of the people we serve, so that services and resources can be aligned with the actual assessed needs while considering all available resources. Without unlimited funds. An approach such as this is fiscally responsible, necessary and complies with Nebraska statute requiring an objective assessment process. You'll remember when we launched the elimination of the waitlist initiative, we indicated a new approach was necessary. That was that was more needs based, fair and equitable for all the old way of just waiting and getting services or getting access to all services after a waiting period of 6 to 7 years via the comprehensive waiver without regard to need, is no longer sustainable. Implementation of new processes and a system can bring about challenges. You will likely hear about some of those from testifiers after me. Obviously, we strive for thorough and accurate assessments as a result of some of the challenges in this area. We have implemented early and ongoing enhancements to the system that include and are not limited to, activities such as increased training for all staff and supervisors, conducting interviews, and implementation of a mandatory 100% supervisory review of all injuries completed. A secondary review whenever an appeal is filed. A staffing review when errors were noted with supporting documentation. Appeal preparation reviews, some resulting in withdrawals and dismissals. Creating the Nebraska interrai manual.

Senator Brian Hardinlegislator

Lowering the age for the adult tool, allowing for a smoother educational transition, and launching the external evaluation. Additionally, when you take a step back and you look at the entire system and not just those with funding decreases, which is 17%, you'll see a system that has continued to support an increase in the total clients we serve, and has had a much larger percentage of folks seeing an increase in their funding, 25% and at or at a minimum, remaining the same around 54%. Dhhs supports the continued implementation of the interrai and the associated tier methodology as tools to better align provider reimbursement with the assessed needs of the individual receiving the dd waivers. Our objective is to maintain a system that is consistent, fiscally responsible, and most importantly, recognizes the individual needs and circumstances and supports of the people we serve. To that end, we have begun the process to secure an external contractor for an evaluation of Nebraska's implementation of the interrai. We hope to learn about successes, as well as many opportunities that may be there to strengthen the system for all. I want to thank you for your time, and I'd be happy to answer any questions related to this. Thank you. Welcome. Big question. Walk us through how these budgets work. The budgets work. Okay. So. Every we have the the four tiers in Nebraska of basic, intermediate, high and advanced. And how these budgets are originally established is there really for the department to know what would be our maximum exposure if financially, if somebody had no services or supports available to them? So historically, these budgets were built on purchasing 365 days of a group home and also attending full time a day site. And that would be round the clock, 24 over seven support. So that that's what the these maximum amounts are. So when you look at the comprehensive waiver that has kind of the basic tier all the way up to the advanced, a basic tier person at the lowest level of scoring has a comprehensive waiver budget of 104,000. What that means is that's what it would cost the state if they were in a full time residential, 24 hour group, home type model or shared living, and also attended a day service. And then it goes up from there to the tune of the advanced tier is a $306,000 budget per year for services. The budgets. There's a a misperception that utilization or lack of utilization, like somebody not using that full amount. Right. So you have folks maybe that live at home who perhaps only attend day services, maybe they're still at the advanced tier for that 306,000, but they're only purchasing the day service component of it. And there's, there's a belief that saving the state money. So I don't request or submit a budget to the governor and then ultimately to you all based on these budgeted amounts, it's on actual utilization.

Senator Brian Hardinlegislator

And so there isn't really any true savings going on when you don't maximize that full budget amount. That's really just an indicator for the state to say, this is what it could cost you. If they had no other supports, and they had to rely fully on the system for group home and day supports. And we have a mixture of folks. There are some folks, some folks in our system that are in that situation, and they do expend the full amount. And then we have many who are not and that are still living at home with with family members who that are still living at home with with family members who are who are taking care of them and providing that residential support and perhaps only accessing day services. And so they use just a smaller piece of their budgets. Okay. Thank you. You're welcome. Questions? Senator riepe. Thank you, chairman. Director green, thank you for being here. I want to note that you have a long tenure, a very respected position, and very someone that's approachable. And I hope that that's been the case. I know it's it's a tough situation that you're in and we're all in my one of my questions would be, and I have a couple here would be, is Nebraska the only state that's having these issues at this time? And that relates a little bit to the source of the formula, is that that's not exclusively for Nebraska. Other states are using this across the country too. Yes. So there are many other states that currently use the interrai. And in fact, Nebraska had been using it for five years prior on our aging and disabled waiver already. So it was only new to the developmental disability waivers in july of last year. And again, we had been using it for five years on the aged and disabled waiver only to determine level of care. So we only had that tool putting giving us one output, which is do you qualify for a nursing home? And that was the decision we used the tool for when we rolled out the interrai in in Nebraska on the dd waiver side in july of 25. We also built it to do the level of care, meaning do you qualify to live at the intermediate care facility, which is sdc? But we also added other outputs for the assessment to include service planning to include which type, which waiver of the three would be most appropriate to meet your needs, a residential component of what kind of residential services would you need? And then also the budgeting tier. There are many states. I think last I knew around 25. They're using the interrai today in some one of those capacities. And so it is a widely used tool across the country, but it is also used for many different purposes. Right.

Senator Brian Hardinlegislator

We we built it to be a very comprehensive assessment intentionally to get rid of all of the independent standalone assessments and kind of put it all into one. The challenge you mentioned, Senator, is there, you know, the the interrai is a validated tool, right? And it's got a lot of research behind it. It's used internationally. It's used all across the country. They have different tools for multiple populations. There's mental health tools, there's aging, there's disability. What you do with the outputs of those tools is where you will often see some of the individual states building them, kind of their own structure of how they decide to fund folks or how they determine that they meet level of care. And so that was unique to Nebraska. When we launched the interrai, it will you will hear folks talk about a case mix index, which is a number that is produced out of the system. The case mix index is really a score that will, will, like or group similar people together and give you what your average cost to serve would be based on how you filled out the interrai. And so like a score of a 1.0 case mix index, interrai says, you're going to be about an average cost for the state and obviously a score above 1.0. You're going to cost the state a little bit more than the average. And below you'll cost less than the average. And so we took that case mix index score, and we just built it into those three tiers, right? So a 1.0 being the average score. We put that in the higher end of our intermediate tier. And then everybody above the 1.0 will go up into the higher the tier. And then when you're below kind of that 1.0, and there's ranges for all of these scores, but that, that piece is where each state gets a little unique in how they use the scoring for their specific state. And that is one of the things that we, we intend to have the evaluator take a look at to see where we set those cutoffs of the different scores, if we got it exactly right, or if there are opportunities to look at enhancing that in any way. It sounds like there are a lot of variables in this. This is certainly not a checkers game, but a chess game in terms of how it moves. Are we experiencing more applicants of. And part of that would be with greater life expectancy that is sort of pushing us out there into accepting, if you will, I'll call it 2.0 that we moved over from just the nursing home side. Was that the motivation that because more, more applicants coming forward? Yeah. So we and this is where it even gets really confusing because the tools are very separate for the different populations.

Senator Brian Hardinlegislator

So on our nursing home waivers, which is the 80 waiver and the traumatic brain injury waiver, those are all folks who qualify to live at a nursing home. And then there's three waivers that you heard the family support the day and the comp. Those have a separate tool still in array, and they have to meet intermediate care facility level of care. There has been growth in both populations, probably more significant growth in aged and disabled waiver. Dd obviously we've had growth with the elimination of the waitlist. But but statistics over the last several years on our developmental disability side of the house are still in line with what the data has been showing for many years, that we generally add about 600 new folks with developmental disabilities into the waiver program every year as, as as newly eligible new net new. Yep. Net new folks. And right now, because we've eliminated the waitlist, that growth is primarily and expected in it's coming in our children because you can come in and get services immediately upon eligible eligibility being determined. We've we've gotten all of the adults into services. So really your adults that kind of are new to the system would be people that maybe weren't accessing the system at all for many years that finally come forward or folks that would move here. But the primary growth and the dd waivers has been in children. I'd like to ask you to respond to this. There was serving on this Committee at the time when we introduced managed care for medicaid. And when we did that, it it changed the system because before. That fundamentally is we provide the service, we send the state the bill you pay. All of a sudden it was someone in between who's saying, no, we have scales and standards that this is what we pay for x and y, and it created a lot of grief at the time. And I don't know whether that's all gone away or not, but is that a comparable thing that we also moved to something that was more of a structured. Discipline, if you will, and not just a quote unquote cost plus kind of a model? Yeah. It is way off. No, you're not way off, Senator. It it is a very, very different tool from what we had before. It's much more comprehensive. If you if you look at the icap in the old assessment that we were using for folks, it really only focused on two areas problem behaviors and kind of your activities of daily living. It didn't look at anything else. It didn't look at what your living environment was, what your childhood looked like. Whether you're in the home, whether you're out of the home. And so we only focused on that and said, based on these behaviors and based on these activities of daily living, here's how much money you need.

Senator Brian Hardinlegislator

And this is looking at the whole person, right? It takes into account many other factors. The assessment is much more lengthier, much more comprehensive. And again, we built the assessment to look at the whole person. And there are five different outputs that we built into this comprehensive assessment. So it is it is new and it is very different from how we did the icap. I think folks will perhaps share with you that, you know, in the icap system, we had even gotten to a place over the last several years where nobody did the actual interview. The team was able to just sit down and say, yeah, there's been no changes and submit that as an update to the assessment. And so some folks, it had been many years since they actually had even had an interview and an assessment completed. A growth of 600 annually, plus the cost of operating cost and another 4 or 5% on top of that complicates it not only for the state, but also for all the families that are providing it. So it's a knotty problem. It's. Thank you, mr. Chairman. Senator, quick. Yeah. Thank you chairman. So I know with the scoring system, I mean, that's been one of the issues for some of these families because. You've got you have people at the top tier who are getting money at the top tier, and they're providing in-home care. And now that they're being dropped down to maybe a second or third tier, and then you have people at the bottom who maybe are coming up, or new people that would be in a different tier. But is this scoring system? I mean, how are we going to how are we going to fix this? Because this is a big problem for a lot of families. I mean, they're providing a lot of in-home care. That's your least expensive care to, because otherwise they may have to move them to a facility. And is there available for facilities for these people? What what do we do with that? Yeah, I think, you know, again, I'll go back to the tool being a much more comprehensive look at the person and all of their needs. And our role as a state is to fund those unmet needs. And so it does take into account when they have supports already in place to meet those needs. And so that's where you are hearing at times where folks living at home might see, might see a different tier recommended. Because their cost to serve isn't going to be as great because we fund the needs that are unmet for the person. And that's that objective assessment process is looking at the whole person. And what what does the state have to step in and fund? Because there are unmet needs that that need to be taken care of.

Senator Brian Hardinlegislator

But that the scoring process isn't something that that's something that the individual fills out or the family member, right? It's not something that the the department is talking to that person or visiting the home. Is that or are they visiting the home to see exactly what those people are experiencing? Yeah. I mean, the inner eye is done in person with the participant. And then whoever else is a part of that generally provider, staff or families, depending on each person's kind of who makes up that support team for them. The site can vary, right? Sometimes it's in a residential setting, sometimes it might be at a day setting where the participants at. But, but it is in person with the participant is the expectation of the assessment. Because I have family, I've talked to families who are there providing round the clock care. They can't that the person that they're taking care of cannot be left alone. They have to have someone there. And every being reduced in services. Yeah. And so either they have to go get a job and leave their child alone or pay for other services. Does the state their child alone or pay for other services. Does the state pay for those services? Then if you have to bring in outside services. Yes. If they if they were eligible for out of home services through the assessment process and they were available in the waiver, that is a service that that would be available to a person on the comprehensive waiver at a greater cost. Yes. Yeah. I'm sorry, I'm a little I'm a little upset about all of this because I have families reaching out to me and it's, and they're, and it's having adverse effects for them. And. If we're going to look at evaluating this, I mean, is there any way we could pause this until we figure out what is happening here? Because it's it's really being it's devastating for some of these families. Yeah. I think, you know, the, the request that that has come to pause the assessment is challenging and tricky and perhaps runs contrary to statute. That requires us to have an objective assessment process in how we allocate resources. So again, I would point out, I certainly am empathetic and I to have here have heard from families who have seen the decrease, but I also in more quiet arenas and not public meetings, have many conversations with families who are saying, this is working and it gave the right decision. Right. Pausing somebody who's at a lower tier who should be going up to a higher tier could also be detrimental to their needs. And so it's, it's a it's a fine line of how that pause would look. And so we are at this point continuing to move into year two.

Senator Brian Hardinlegislator

We already have we should begin to see less people changing because now we're in year two of the tool. There will obviously be some nuances to that where folks that, you know, reach a certain age and switch from the child tool to the adult tool, because there's two separate tools may see some differences, but for the most part, you shouldn't absent significant change in needs, you shouldn't see drastic swings in, in the year two evaluation. But again, this is this is all stuff that our independent evaluator is going to be tasked with taking a look at and giving us recommendations. Once we put that rfp out there, we are anticipating from when we sign it, that it's a five month timeline to have that assessment in that report back to us. And so we should relatively soon have some information from them. And they look across the board. Independent review will look at everything. They're going to look at everything and. One other question. Sorry, but how many people do you. I mean, do you have staff to do this. I mean for dhhs because it's to change over to this. It seems to me that you're. You does it require more people than you used to have for the other assessment tool. To do the the interrai assessment versus the icap? Yes. And we also, you know, intentionally have this assessment kind of outside of our case management system so that it's not case managers, service coordinators delivering these assessments. It truly is a separate kind of independent team, if you will, within the division. In what we call our eligibility enrollment unit. There is about 40 staff in that unit right now that conduct all interrai assessments across the state for all folks, both on our aging population and physical, physical, disabled waiver, as well as our developmental disability waiver. And it has been a challenge, right? These this is a process that does not stop, right? The assessments. You can't just pause them. And part of the issue is one of the outputs we use for this tool is the level of care. And that's a mandate from cms that they have to be assessed every 12 months to ensure they still meet the level of care. And so because we're using the tool for that, the staff have to go out every year and administer the tool so that we can verify that you still meet criteria for nursing home or for icf. And so when you know you have vacancies in that team or people call out sick and those assessments are on the docket. I mean, this is a this is a very tightly run machine with a very limited number of staff, but there, there we still have some temporary folks that have been assigned to this unit. And we're working through what the the fully staffed model should look like.

Senator Brian Hardinlegislator

I hope we can get work through some of that, especially for people who have been maybe reduced that need to be reassessed and have that, you know, that they can at least, you know, find out that they can still provide that care for their for their person in their home or. Well, and I didn't mention that there still is also a secondary process that if, if the interrai has been complete and teams to include families would feel that that is not sufficient to meet their needs. We have always had what we call an exception funding process, where that team can fill out a request to our clinical team that is staffed with our psychologist, our nurses and our behavior support specialists that make decisions on whether they can receive what we call exception funding, which is they would get higher tiers of funding based on identified need that is unmet. Still, even in the current structure. And we have several folks that are on approved exception funding request. I just have one more question, if I could, and that has to do with staffing. I know in other areas we've especially in behavioral health, qualified staff, people finding people to work in, you know, in nursing homes, finding people to work in substance abuse disorder, those type of things. And psychologists and counselors, I mean, do you find it hard to find qualified staff? And then once you have hired someone, having them being able to train them so that they can do the assessment properly and, and not push them through, through too quickly. Yeah. I mean, we have we do experience turnover in this unit. It is probably more for, you know, entry level kind of, of wage position in the system. And so it, it does lend itself for people moving up, either getting supervisory roles or moving, kind of advancing their careers, that, that it is often kind of a stepping stone position, if you will, for folks. So turnover is there. And, and we do have vacancies. This team for a while was running generally. Around 6 to 7 vacancies on a consistent basis. Out of the 40. I'm sure that's a challenge. Very much so. All right. Thank you Senator. Thank you. Thank you chair. Thank you, director, for being here. You mentioned a little bit about the process. Can you unpack the appeal? Can you can you unpack the appeal process a little bit more? I guess my concern is the transparency of this process. Can you touch on that a little bit and how families can go through the appeal process if they disagree with the tools assessment? Yeah. So the appeals that we that folks are referring to, these have been in place for many years. These this is the standard appeal process under the administrative procedures act that you go through for medicaid denials, waiver denials, funding, you know, changes all of that. And so.

Senator Brian Hardinlegislator

Every participant in medicaid, when they have a notice that's issued, it's called a notice of decision, and it goes out to the participant to say, here's your medicaid notice, right? And so all of the families, once they're finished with an inter, I get a notice of decision that says based on the assessment, here's the, the notice that says your tier is going to be this low and the effective date. And then on the back, it will have all of your appeal rights that you have to file that appeal. When you file the appeal, it is it is sent into a hearing office at dhhs. That is a unit that is in our legal services department, that has a team of hearing officers that then start the process to get that hearing set for for an administrative review. You know, the back and forth between the state and the appellant to get records and exhibits put together, get submitted to the hearing office. And then all of the hearings today are currently conducted by phone or video conferencing. And, and the the appellant has the burden to show that the tool is inaccurate, that the needs are not being met. And you heard Senator roundtree eloquently said the the numbers there of the assessments that have been filed. And then there's really kind of three outcomes of the assessment or, excuse me, of the hearing. So the hearing officer will will issue a a recommended order that says, based on the evidence that was presented at the hearing, I will either affirm the decision that the department made. I will reverse that decision. And then we also have some appeals that get withdrawn or dismissed. And then all of those appeals after the hearing officer gives their recommended order, come to my office for my signature as the final decision maker on the appeals. And then beyond that, you've seen some appeals that have moved on where they've filed an appeal on the administrative order to district court. Do you do you know how many of those I know off the top of your head? Probably not. How many of those have actually been those appeals have actually been reversed. Yeah. So of the total this is now through these numbers change each month. So sometimes we often have different numbers based on which report we pull up. But through august we've had 584 appeals. 368 of those have been closed, meaning they've gone through the hearing and received their decision. Of those, 368, 175 were affirmed, meaning the department's decision was was correct, 189 were dismissed or withdrawn. So there wasn't a final order. The the appeal ended up being dismissed. And I can explain that right after this next number. And then the other number would be reversed, meaning that it was the other number would be reversed, meaning that it was remanded back to the department to redo that. Something's not right.

Senator Brian Hardinlegislator

And there were four of those. So the 189 that are withdrawn and dismissed, that is largely a group of folks that filed the appeal. And then upon I mentioned earlier, one of those enhancements we made to the system where we do that pre pre-hearing kind of review, like, did we get this right? Right. Because we want to go to the hearing, making sure we have 100% accurate tool and the families might contact us or we might discover it in our own review. But if, if prior to the hearing, we are aware that there are discrepancies in the tool, we will correct those and we will rescore them. And in many of those cases, then that tier went back to where the original issue was, and they withdrew their appeal. So you could look at many of those as though the families were successful in their appeal. They just never got to the hearing because we were able to resolve it internally with that internal review prior to the actual hearing date being established or occurring. Does that help? Yeah it does. Thank you. Okay. Yeah. I'm going to do a strange thing. Director. Yeah. Not that you're not used to me doing strange things, but anyway, I'm going to ask a question and then I'm going to leave the room because I have to go to a national security briefing. Okay. Senator riepe is going to take over for me, but I'd like to get your answer on the record. If we could just would you speak to the entire budget, the total budget of what we're looking at here? Maybe. What did it look like before? Compare it to how things are working under the inter I. And so anyway, if if I could get that answer, that would be wonderful. And so I just wanted to explain what I'm about to do. Ask. There's nothing like asking a question and then running away, but it's all being recorded and so forth. So when we're done here, kathy, you're up next. All right. Thank you. Thanks. So obviously our budgets both on, on the ad, tbi waiver side of our house, which again, nursing facility waivers as well as our dd waivers have increased I think in total right now, the division as a have increased I think in total right now, the division as a whole, which most of this comes out of waiver services. But we're we're now sitting at about 1.1 billion in our division for all of the services and supports that will include esdc. That will include all five of the waivers. And then many of you know, we have other units of, of smaller programs for, for folks, but predominantly, most of that money is within those five waivers is total budget. And it continues to increase in both waivers. We've had population growth. And on, on the dd side expected. Right.

Senator Brian Hardinlegislator

We knew that when the elimination of the waitlist occurred, that those 600 folks that we knew were always kind of newly eligible to the system were going to be there. There is also attrition on that waiver that that does take away from that net a bit. Attrition generally on the dd waivers will run around 250. Folks leave the waiver every year. So that that accounts for that. What that growth looks like on dd side. Are there other questions from the Committee. One more. Thank you. You know what like the caseload for each person who does you know, like, let's say for service coordinators. Say caseload for each. Yes. So on the on the dd waivers, those caseloads are 1 to 30. And that's established through policy and on the waiver similarly established through policy. Their caseload is 1 to 40. Yeah. Okay. Tom. Do you think because of some turnover there's been caseloads have increased a little bit for some. Yeah. Maybe on this side of it. Yes. So on the dd side caseloads have increased that that has been actually one of our kind of cost saving measures that we instituted caseloads prior. The most recent increase was we increased the dd service coordination caseload from 28 to 30. But a couple years prior to that, we had moved them from 25 to 28. So over the last couple of years, we've we've changed those caseloads from 25 to 30. On the dd side. I just was referring to like, if you've had some turnover or some other coordinators having to pick up more, more of the people in the state because of some of. Yes. So any time there's a vacancy in a service coordination position on any one of the five waivers, that 30 or that 40 caseload goes out and gets distributed amongst the other workers who are still plugging away. And so you'll often hear them refer to my caseload and then my coverage that folks will have a coverage caseload of cases that they're temporarily holding until that position gets refilled. Okay. All right. Thank you. Other comments or questions from the Committee? Seeing none. Thank you for your agreement. Appreciate it. Miss martinez. You are next. The reason I moved chairs is this is my wingman, and he's going to help me to kind of help coordinate so that we keep moving so that we all can get out of here before it turns dark. If you would please state your name, spell it for the record, please, and then feel free to go ahead and share with us your thoughts. Great. Kathy martinez cathymartinez. Good afternoon. Senators and members of the Committee. Thank you, Senator rountree, for introducing LR 404.

Kathy Martineztestifier

My name is kathy martinez. I'm the president of the autism family network and the mother of jacob, my adult son with profound autism. Jake is 23 years old and attends a day service site 35 hours per week. Jake's high level of need requires a one on one at all times. He cannot speak, he cannot toilet nor bathe independently. Has an iq in the low 40s and he is an elopement risk exhibits aggressive behavior and his sleep disorder, often waking in the middle of the night to pull food from the refrigerator and dump on the floor. Taking care of jake is a full time job, and we do it out of love for our son and to protect him. Our family has been advocating for him for over two decades in the schools, in our community, with insurance companies, with dhhs, and within this very legislative body, we will continue to speak out against injustices for vulnerable disabled people like those occurring right now in Nebraska. I'm here today to provide information about the current problems within the disability waivers, most specifically the interrai assessment tool being utilized by dhhs. While dhhs will tell you that 25 other states use the interrai, it is important to note that in those states, it is mostly used for geriatric level of care for nursing home, not the d d I'd. Community arkansas previously used it, but a court case stopped the state's ability to use it any longer. Nebraska dhhs decided to give it a try, despite what happened in arkansas. The interrai is inaccurate and meant to be a budgetary tool. There is no longer person centered planning, nor is it a needs assessment. If a person's budget can be reduced solely upon who their caregiver might be, I believe this punishment of budget reduction based on having a family caregiver is also a violation of the olmstead act, which allows a person with a disability to choose where they would like to reside without punitive result. We all heard the previous assessment tool, the the inventory for client and agency planning, otherwise known as the icap, was outdated. Well, that may be it was more accurate. An average year of icap yielded approximately 100 appeals per year. The first year of the interrai has produced 584 appeals. The case mix index score, or the cmai from the interrai assessment does not factor in doctor's documentation, therapy notes or functional behavior assessments. I have provided this Committee with my sons just for reference of what is being ignored by professionals. How can dhhs ignore psychological evaluations and expect an accurate assessment? The cmai score from the interrai is the only determination of an individual's funding tier and level of need. Furthermore, there are only a few questions from the inner eye that factor into the cmai score. It is a waste of taxpayer money to do annual assessments on a stable population of people with developmental disabilities.

Kathy Martineztestifier

Our kids aren't getting cured. Dhhs doesn't even have enough strang trained staff to do the annual assessments, so they've pulled people from other positions to complete these assessments. Now they're telling families the nri can only happen between the hours of 10 a.m. And 3 p.m. Creating even more hardship for working class families. They're also telling families that the assessment time cannot exceed 90 minutes. For reference, my son's first assessment took two hours and 20 minutes just to get through all of the questions. So what happens when we hit the 90 minute mark and we haven't gone through all the questions. We are at a three minute piece, so I don't want to just cut you off cold. Maybe you can pull it together a little bit and get finished up. I have four more paragraphs, sir. The big paragraphs are. Their average sized paragraphs. Okay, well, we'll take a risk and go. Go ahead. Will you allow me to continue? If if if it seems like the fourth one is very long, I might. My son's first stinner I was nine months ago. Now he is being forced to have another one. We still don't have a determination from our appeal from our first nri. In december of 2025. There were 26 errors in that assessment, two of which were omissions of his diagnosis and his medication list. When I asked the department to fix those errors, the response was that they could add those, but it would not affect his score. Shouldn't a person's diagnosis be imperative for an assessment for a developmental disability waiver? There are other issues with this assessment for use of nonverbal individuals. If an individual can't respond to a question, the assessment does not consider what the guardian reports. That information merely goes into a comment section which is not weighed into the score. Vulnerable people without a voice are forced to take this assessment. This is no longer person centered planning when this assessment is so far off the mark. Dhhs knows about the shortcomings of the interrai because we've been telling them for the past year, but our cries for help to dhhs and the governor have fallen on deaf ears. There seems to be no empathy or compassion. Our lives are challenging, but the care we provide comes from love of our disabled children. This is not the life I would have ever chosen for my son, but we do provide a good life for him, preserving his human dignity and keeping him in the care of people who love him and prevent him from being abused and neglected in an institutional setting. I am not becoming wealthy by caring for our child. As the governor has suggested in his derogatory comments about the disability community. Okay, are we getting close to the fourth? I'll eliminate the last two if you just let me finish. I've spoken with psychologists about potential alternative assessments.

Kathy Martineztestifier

Since director green refuses to pause the use of the inaccurate interrai, what they are indicating is that the supports intensity scale or the sis assessment is now being used in 17 states with accurate results. I provided handouts to this Committee with information on that assessment. There also are issues with the other waivers. But that's what I'm going to cut for you, sir. And I just like to to finish with if we can't get the governor or dhhs to fix this, we are employing our legislators to intervene. Helping the disabled has never been a partizan issue and never should be. This is a pro-life issue. This is a human dignity issue. Please help protect our most vulnerable nebraskans. Okay. Thank you very much. I have two comments. One is this, I think a typical situation where when you've seen one, you've seen one and no two cases are even close to being identical. Number two families are in a not a very strong negotiating position when you're trying to determine what you can or cannot receive, you don't have a lot of options. But thank you for being here. Are there questions from the committees Committee? Yes, sir. Senator quick. Yeah. Thank you chairman. I know for paragraphs. I know I won't, but, you know, I don't have the lived experience at all of you have had. But I hear from families and I think it's it's I appreciate that you're here fighting for your and advocating for your your loved ones. On your like a day to day thing for you, for your with your child, I mean. Do you have day services in two or is it or how does that work for. He does have day service. He attends 35 hours a week. But with the reduction of the budget that the department is suggesting that he go to, that may be in question, because the day service site will not be able to serve him with that budget. They're trying to reduce him to an intermediate budget, which is the equivalent of $18.89 an hour reimbursement for a day service site, and the one on one staff that they have to provide to keep him safe, and the others in the day service site safe would not even cover the dsp, let alone administration costs of the agency. Okay, I think that kind of helps you because I have someone in grand island who has a ten year old who goes to day services, and I was trying to figure out how I haven't been able to speak with him yet, but I was just made aware of it. It is putting that in danger. A lot of people, like my husband and I, both work and we have to work, and we wouldn't be able to work and support the rest of our household and our family.

Kathy Martineztestifier

If one of us had to quit our job to take care of him full time. If the day service site stopped taking him. Okay, and when they come and did the assessment and you said you went, it went two hours. I mean, is it more they're just like asking questions or trying to fill out the application. There's hundreds of questions that are asked, but only a handful actually matter in the case mix index score. So I'm a bit confused why we're wasting people's time with a 2.5 hour assessment when they're only legitimately using 6 or 7 questions to factor into the score. And one of those that does affect or two that would affect a person's score would be if the individual has a supportive family, that reduces their score, and if they have not left the family home, then that reduces their score as well. So people are being penalized for living at home. Okay, okay. And what was it like before then with the with the previous. My son had always been an advanced or a high funding tier. He was reduced to high during covid, during lack of documentation quoted by dhhs. And now they're reducing him even further with this assessment tool. Okay, so they don't take any in any account like a physician's. Or do they take that? No. I was told by director green in my meeting with him in march that they don't have to look at the fba anymore, because that's factored into the assessment. Even though the year prior the department recommended the fba for him. Okay. All right. Thank you. Thank you Senator. Any other. Senator. Thank you. Thank you Senator, you piqued my interest with the the appeal process. You said you went through. I'm still trying to figure out the the efficiency of the appeal process, the transparency of the appeal process. I know how frustrating it is to work with government, local, state on an appeal process. So I'm trying. Can you highlight what what that process was like? I see you do not have a determination yet. We don't have a determination yet. First of all, families have to hire legal representation. They don't have to. But if they want a chance at winning either in this appeals process or if you take it to district court, it's recommended you have an attorney. So that's costing families of dollars for retainer fees that we don't have. And it's it's a very lengthy process, and we don't have a determination yet. So I've asked the department what will happen if you're forcing my son to take another assessment tool next week, you're having him be reassessed. And we don't have a determination from his 2025 assessment yet. They told me that the 2025 appeal process will still stay in effect.

Kathy Martineztestifier

So I'm not I'm a little confused why we're doing another one if this one's still in effect, because while you're in the appeal process, they can't reduce your funding level. Burt. So now we're doing another one. So I'm questioning, am I going to have to hire an attorney for the second assessment and, and spend another $5,000 for a retainer fee, and then we'll have two appeals in place at once. The whole, the whole process is a bit confusing. Okay. Thank you. Ballard. Thank you. Any other questions from the Committee? Seeing none. Mr. Martinez, thank you very much. Our next testifier will be stacy pfeiffer. Is that correct? Welcome. If you will state your name, spell your name, and then proceed with your presentation. Thank you, Senator riepe and members of the Committee. My name is stacy pfeiffer, stacypfeifer. Today I'm going to speak about the economic and socio socioeconomic impact that these changes are having on our state. As the saying goes, you cannot cut your way to prosperity. There are far reaching effects that these cuts will and are causing. The waiver program touches every district in Nebraska. Changes that dhhs are making are cutting already thin margins that service providers are working with. Many are dangerously close to closing. Many are not able to offer the same services to clients with the new budgets they're given to work with. As kathy just attested to, they're already having staffing difficulties, and now their staff are asked to do more with less. And this is resulting in lower quality of care. The instability of these jobs is discouraging people from even applying. So there are several service providers across the state who can't even get people to apply for these jobs that they have a shortage of already. And some other changes that dhhs is making on the back end is making the overhead higher for these these companies. These changes will force some of them out of business. And in many rural areas where there's limited options, there could be no option if a family has to stay home to care for their loved ones, they may have to quit their job. This would lower taxable income, you know, and and these businesses closing would would lower tax income and people losing their jobs. You know, there's already been lots of jobs lost across the state. So this would only increase that. It could take years and maybe even decades to recover from what is being undone through this process. You know, if a if a service provider closes, it's not like one's just going to pop up a week later and take their place. You know, that can take a long time for them to build back up and get back to the place where they're where they are. Additionally, a families are losing their income because they no longer have the waivers to cover their care. They could lose their home.

Kathy Martineztestifier

They could have to rely on food stamps, housing, medicaid, and other public benefits. They also have would have less disposable income affecting affecting their spending. So it's just, you know, a never ending. The cuts are just going to affect other things and you'll have less income in the state because you won't have people spending like they should be. You won't have the tax income from those, those things. And you're going to be spending more on other benefits instead of these benefits. Some families may not be able to care for their loved ones and may need to search for institutional care. But where will those families go? Beds in Nebraska are 95% full. There's currently only 12 open beds in the state. This current system is in place is a result of 50 years of slow changes in building up of programs. The cuts and the rates in which these cuts are being made is shortsighted and and will not have a good ending. We no longer have the systems that we had 50 years ago, and medicaid, medical advancements have made it possible for people with disabilities to live longer. You can't tear a program apart without having a plan in place. Three minutes. Okay, okay. Last four paragraphs. Yeah. So there are also social benefits to this. And, and one of the big things I wanted to make sure I said that talked about was that a country is or in this case, our state is judged by how they treat their most valuable vulnerable populations. So what are these cuts and changes saying about Nebraska? Nebraska has always been a pro-life state. They have voted repeatedly to protect the unborn and against euthanasia. However, by taking necessary care from disabled individuals, especially those with high needs, you're allowing passive euthanasia. This is not who we are as nebraskans, and we need to do better. We need to give these individuals and families the dignity that they deserve. Thank you. Are there questions from the Committee? Senator, quick. Thank you. So for rural Nebraska especially, I mean, we probably don't have enough providers the way. I mean, we don't have enough providers in lincoln, omaha and places like grand island. Right? So what happens in rural areas, I'm sure they for like day services or any type of, of, you know, if they have someone come in, they have to drive a distance to come to the home. Right? Right. And some of the services are having to reduce their services. So like, if somebody's budget has been lessened, that means that if they're, they're working with a group of individuals who normally would go out into the community, they may no longer be able to do that because they now have less of a budget. So it affects not just that one who had the lower budget, but everybody in that group.

Kathy Martineztestifier

Some people are are having sort of an opposite problem where if their budget was increased and there's a service provider in the rural area who can't offer those services that their increased budget requires, they're saying, well, we can't serve you with that. So, so those people don't actually want that increased budget. They want to stay where they are. So even even though normally you would think an increased budget would be a good thing, that's not always the case. Okay. And then you were talking about the number of beds that someone had to move someone to a facility because they couldn't continue in home care. And there's only 12 beds. I mean, what do people do if there's no available beds for the. Exactly. That's that's the big question. That's the question everybody's asking, what are we going to what are we supposed to do? You know, there are people now who are trying to find alternatives and aren't having any luck at that. So they're they're saying, what do we do? Yeah. Okay. All right. Thank you, thank you. Seeing nothing else, thank you very much for being here. We appreciate it. Miss bradford and the next testifier is mr. Brad murman. Is that did I tear that down? Yes. Oh, I think he did. He step out? Yeah. Okay. Then we move on to mr. Craig. Is that it? I'm going to mess with people's names here, I apologize, you'll set us straight when you get up here. Orr set me straight. Thank you for being here. If you would state your name, spell it and for the record. And then proceed with your presentation. Thank you. My name is craig, craigcasados. Okay. Thank you. Good afternoon. Chair and Committee. As I said before, my name is craig. I'm the executive director of the Nebraska association of service providers. Our members support nebraskans with intellectual and developmental disabilities in their homes, jobs, communities, group homes. In 1981, this Legislature declared that nebraskans with developmental disabilities disabilities are entitled to live and work in their communities. Olmstead and the ada made it a federal obligation. That promise is coming apart, and the people holding it together family members, providers, direct support professionals are being asked to do more for less, to fix a budget deficit that they did not create. In the last three years, providers have received one rate increase 2% in july of 2024. Well, every other cost around in roads. Nothing this year. Not looking to have anything next year. Dhhs is own workforce, report says the median direct support professional earns $18 an hour, $3 below a living wage. For providers, turnover is at 51%. Nearly half of our workforce has been on the job for less than a year. What does that look like? It looks like somebody new coming into your house every six months.

Kathy Martineztestifier

Okay, our presentation acknowledges wage effects dhhs own presentation acknowledged wage effects, quality of care. We agree. Here is what has already happened. And most recent state workforce surveys, 37% of Nebraska providers are reporting turning away referrals. The services that need the most staff go first when one supports job coaching, community integration, the in-home service that the family support waiver depends on. This year, it has moved from turning away referrals to closing doors. A program that has providers in northeast Nebraska towns has had to close three of them in small towns. And they're right now, they're looking at closing a fourth and another small town simply because they can't get what they need. As far as staffing goes, another provider in omaha could not continue on its own, but luckily was able to merge with another provider. The division has told us that over the last year, and this is plus at least nine providers have closed their doors. On september 17th, it was announced that another id agency closed its doors the day before and that six providers on the aging and disability side have closed within the past month. The agency's still operating report the same four conditions short staffing, declining intakes, shrinking services and. Your three minutes. Okay, I know you you've provided us with a lot of information. I did. And everything that's on there. I have everything backed up for you in the packets that that will discuss the rest of my testimony today. So obviously, you've done a lot of preparatory work and we we appreciate that very much. Are there questions from the Committee, Senator quick. Yeah. Thank you. Chairman. So I know, you know, we had a meeting here a while back, and we talked about some of the challenges and some of the providers have. And I know there was some there was I know we were talking about an app that they were using, which really caused some hardships for some of the providers when they were. Yeah, yeah. Is that something I'm trying to remember? Maybe you can explain how that works. And is that something that they're required to use, or is that or how does that work. Certain, like if you're going into somebody's home, things of that nature, you have to clock in through an electronic device. You've group homes, things like that at this point don't have to do that. So family support waiver, things of that nature, we, they would have to use to clock in. And it has its issues as as any electronic steel. And that's for the state to record the number of hours that they're actually providing to record the number of hours that they're actually providing services. Yeah. And I believe it was a first attempt to help with fraud, waste and abuse to guarantee that people were coming to people's house for the correct times. Okay.

Kathy Martineztestifier

And maybe you can talk about some of the other issues some of the providers are facing. I know you talked about, of course, you know, the reduction in reimbursement challenges. I everything rolls around the services that somebody gets. And then when you add things like nri, that seems to be decreasing a lot more, it means funding on there. And then with providers. Not really getting increases in their waivers means that they're getting increases in their waivers means that they're having to do the same thing that they've had over years. But the cost of everything else in the world, including all the trainings that they have to get their staff on, things of that nature, everything is increasing for them. Whether or not they're not getting rebated back. Has there been increased requirements from the state to for. To have certain type of staff or to have requirements for staff to meet certain qualifications, have those increased over the years or. Requirements that the staff need. For training and certification? Yes, and some of that is, is some of the issues to where the state is mandated. Certain training programs, okay, that all the providers have to use, and where that becomes difficult for providers is whether we'll just pick on matt, which is the crisis intervention training that's needed once it's mandated in the state. Matt can charge the providers what they want because they have no choice on there. And so it's been reported to me as recently as two weeks ago that to get two trainers trained to train all of their staff, it cost them $7,000. Okay. All right. Thank you. Yep. Are there other questions from the Committee? Okay. Thank you very much. Thank you, thank you. And our. Mr. Brandt murman, you're in the room. We would invite you to come forward. We did receive, as a Committee a handout from miss martinez. I initially thought it was a master's degree. That would give us something to keep us up, keep us out of trouble in reading, I guess. Thank you very much. Okay, sir, if you would. Again, I know you've been here the last hearing, but if you would state your name and spell it for the record, please, and then proceed forward and see if you can keep it within the three minutes. I know that's tough. Yeah. It's tough, especially especially. For me. But we'll give it. Auctioneer voice. You know. You don't want to hear that. That's not good. Well good afternoon, Senator hardin and members of the Committee. My name is brad narins. Bradmeurrens, and I am the public policy director at disability disability rights, Nebraska. I thank you for the opportunity for the opportunity to you today about Nebraska medicaid waivers, the aged and disabled waiver and waivers play an important role in the lives of disabled nebraskans.

Kathy Martineztestifier

They are the primary means by which Nebraska delivers home and community based services to people with disabilities, which allows many nebraskans with disabilities to live in their communities and avoid unnecessary institutionalization. The waivers are also the main vehicle to eliminate the waiting list for dd services, a list that had existed and grown for decades. When the division of developmental disabilities proposed drastic reductions in compensated hours for families taking care of a loved one, the stories from families clearly demonstrated that the services and supports provided by these waivers are significant. They are not cosmetic. For many families, waiver services are a life or death issue for their loved one. For many families, other service providers such as home health care or institutions like a nursing home, are ill equipped to care for people with disabilities with significant service needs. As such, Nebraska must be very careful that changes to waivers don't undermine the effort to eliminate the waiting list and result in an increased risk of institutionalization. Medicaid waivers can address a variety of disability types and provide a wide array of services. These services utilize medicaid funding so that states can use more federal dollars to experiment serving people with disabilities to find efficiencies. They are a way for states to reduce costs, yet still provide new services and or services in a different way. Using ai for eligibility or assessments is risky. Since ai operates on information it is provided or is already available. Existing stereotypes and tropes about disability can be baked into the process. I would be hesitant to let machines determine what healthcare services someone is eligible for. Maybe the ai thinks they know better than human doctors or clinicians. Maybe ai doesn't understand or have reference for the health conditions, diagnoses, or how a person's disability truly impacts numerous aspects of their life. Who does one appeal an ai decision to determining eligibility assessments or other activities are often nuanced. A benefit of human interaction, knowledge, or experience. With the integrated reliability issues and other inconsistencies exposed during the interviews to assess disability needs through the inner eye. I'm very concerned about leaving these decisions to an ai chatbot. Thank you for your time and attention. I'd be happy to answer any questions you have. Thank you very much. Other questions from the Committee. Are you confident that ai is in fact a part of the assignment? Well, I was referring to the fourth the fourth category on the LR 404, talking to you about using ai for eligibility and assessment determinations. I'd say that ai seems to get into every discussion anymore, regardless of whether it's applicable or not. Yep. Anyway. And no, no questions. So thank you very much. Thank you. Our next testifier is mr. Phil grave. Thank you, mr. Grave, for being with us. And if you will please state your name, spell it, and your stuff is being handed out at this time.

Kathy Martineztestifier

But go ahead and proceed in the interest of time, hopefully within the three minutes close. Very close. I my name is philip gray. Philipheray. They say a picture is worth a thousand words. I don't have a picture, but I do have a thousand words and I'm out. We don't allow props anyway, so. I'm currently the president and vice president of the arc of Nebraska. I'm also a volunteer on the governor's advisory Committee and on the state medicaid advisory Committee. I also work for the social security administration for almost 40 years and have some technical knowledge about what I'm talking about. The current process to determine medicaid eligibility for individuals on ssi is constructed in such a way that it. It adds barriers and roadblocks to a smooth transition and causes errors in making those determinations. The question I'm addressing here is, would Nebraska be better off served by moving to section 1634? Under section 1634, a state can enter into an agreement with the social security administration so that ssi applications can also serve as a medicaid application, potentially reducing Nebraska's administrative costs and possibly barriers for Nebraska's disabled individuals to qualify. Ssi is a federal program for individuals that are blind, disabled, or over the age of 65 and meet restrictive income and resource requirements. Ssi eligible individuals are categorically eligible for medicaid and therefore are entitled to medicaid automatically once they are found eligible for ssi. There are roughly 28,000 ssi individuals in the state of Nebraska, and I handed out some material with that information on it. The Committee looked at this issue in 2024 under LB 1007. At that time, the department determined moving to 1634 would not be beneficial. The fiscal note from dhhs said Nebraska would have to pay half of the applicable administrative cost, but it also said the average rate was unknown. It identified implementation and computer system costs that were also unknown. Their decision clearly was not based on actual numbers or deep analysis of how the transitioning would impact Nebraska's medicaid community, or the management by department of health and human services. 1634 agreement says ssa can only charge the states one half the additional cost to social security for providing data to the states, and cannot charge any program related costs. Nebraska already pays a fee for this service, and it is unknown if there would actually be additional costs by transitioning to 1634. Of the 42 states currently eligible for the program, 34 have elected to sign up. Such numbers indicate Nebraska should conduct another review, but this time based on actual numbers and experience of current at 1634 states. Nebraska's current process also can result in errors for the ssi eligible individuals, causing disruptions for the individual and unnecessary administrative work for the state. I believe they have reduced their error rate, but I don't know if they have. As the numbers are not tracked.

Kathy Martineztestifier

There are two concerns with making this change is the 1634 system less costly than the Nebraska's current system, and would it contribute to mltc stated goals of reducing redundancies, creating a more seamless customer experience, reduced administrative burdens and improve access? We are at the three minute and we I, I got I'm done. I'm done. And does it also improve the process for the ssi population? These decisions cannot be based on estimates but on real numbers based on information from ssa, cms and the experience of 1634. Thank you for your attention and I will be pleased to answer any questions. The Committee clerk does retain all of the reports, everything. So she will be hanging on to your written report that you have shared with us. It doesn't just get tossed aside. Okay, okay. I will turn to the Committee, see if they have questions that they want to direct at you. Are there any questions? I have one, Senator eeoc has one. Yeah, yeah. So when for people when they're applying for ssi, what kind of process is that? It's a very rigorous process. To qualify for ssi, you have to be blind disabled under the social security standard, which is a very rigorous standard. And you also have to meet restrictive income and resource requirements, or you have to be over the age of 65. It is a rigorous process. I don't know the current statistics, but when I was working, it was of the initial applications. There was usually denial rate of around 60 or 60, or an allowance rate of about 60 or 65%. So it's it's quite stringent. And social security also has at least they did a pretty active quality control system. And anybody on ssi has reviewed annually their their, you know, they're not put on and then forgotten. There was an annual review. And so when the state requires a second application, they're really duplicating the first application and they're trying to decide if the person is entitled to ssi, and in fact, it's already been decided. There are issues of transitioning, there are computers, adjustments in computer systems. There are some reviews that the state would have to do, such as individuals. The let me take that back. There are three amendments that makes the state's problems of making these decisions a little more difficult. You can be entitled to ssi, but have the ssi check suspended because you qualify for under two amendments or three amendments. The amendment, the 1619 amendment and the disabled adult child amendments. What those amendments say is that if you're a disabled person disabled before the age of 22 and your parent qualifies for social security, then you are qualified on their social security record as a disabled dependent. When that happens, a lot of times the person's ssi check is placed into suspense because of the income from social security, but they are still entitled to ssi for technical reasons.

Kathy Martineztestifier

One of the reasons for that is most of these folks on ssi came out of institutional care. That the ssi program is 75 was the means for individuals to transition out of amherst. 83 minutes is. Okay. And just to finish this, if we remove their entitlement to medicaid under those circumstances, they would probably have more. There would be a more difficult time staying in the community. Okay. All right. Thank you. Okay. Thank you very much. Hearing or seeing no others. Thank you very much for your testimony. Thank you for your time. Thank you. Our next testifier is catherine rohloff. Cathy. Is that. Oh, no. Sorry. My apologies. Role rall. Okay. Okay. I promise. As Senator reid, before you remind me of my three minutes. I am asking for an accommodation under the americans with disabilities act because of my disability. Well, I think we have a lot of disabilities here, so I'm not. I will make that judgment call at the end of the three minutes. I'm not going to grant it in advance because we all have time concerns, and we're interested in hearing what you have to say. And so I will ask you to state your name and spell it. That's fine. But also I that I can contact the lawyer and I, and I'm willing to do that because. If you find that necessary, then that's what you should do. I'm not I'm not going to be intimidated by that. So please proceed. Okay. My name is kathy hall. Hkathyhell. And I am the co-chair of the olmsted advisory Committee. But I am here to discuss how the the modifications to both the dd waivers and the disabled and the use of the interrai assessment processes will have negative impact on olmsted. When you go to the olmsted page. On the harm and the health and human services website, you see a statement that Nebraska's olmsted plan is a roadmap to a strong state where we can all live and work in our communities. The olmsted vision is people with disabilities, living, learning, working and enjoying life in the most integrated setting. The olmsted decision. That states have a legal obligation for providing services to people with disabilities in the community. This is a civil rights. I feel. I fear that the current process. Nebraska is implementing is pushing people to institutional settings. The integrator is a starting point to assess an individual's needs. It should not be the end point. The centers for medicare and medicaid services have had repeatedly indicated that person-centered planning is a core requirement. Only community services. That means Nebraska must comply with person-centered planning requirement, or we risk being out of compliance with seeing that if someone's budget has moved from advanced to. Intermediate or basic year, how is the state assessing if that decision is person centered? If there's any consideration of the individual's.

Kathy Martineztestifier

Budget, the chief goals for employment or community integration, my understanding that it does not allow those things. It also does not take into consideration health and safety of the individual, and the community is somewhere in advanced tier. As staff on a 2 to 1 ratio because of the individual behavioral needs. And if a budget reaction due to the entry system move to a 1 to 1 ratio or even less, how is the state assuring health and safety of the individual to the other people with disabilities at the time? With all the community allies? If someone has high medical needs and is in a wheelchair, and does not have staffing, show up to help them do the shortages of staff and they can't get out of the chair for 24, 36 or 48 hours. We know that they will have skin breakdown. This could become life threatening. I know of no system that exists that would allow the state to the situation or for the individual to get immediate help. If the agency does not respond, especially on weekends. And as murphy's law says. That's when that will happen. But that is a reality. You are at your time, limited. If you have some new information, we would be willing to listen to that. I am actively involved with people with disability all over the country. I know who I know individuals who had no stash of 20 to 48 hours, no access to food, drink or medicine, inability to get out of the bed or toilet. This can lead to uti, sepsis, or death even. And I previously stated, when I was talking about olmsted, we do not have adequate system to ensure health and safety. There is no system that facilitates emergency placement. In the case of a caregiver death. There needs to be a well known exception present well functioning grievance process, a system where adverse decisions are reviewed independently without a conflict of interest. They do not exist in Nebraska and meaningful way. I think there is Legislature could help us improve on this. I fear that we might not be in compliance with cms's requirement for person centered process and the requirement for an exception process. If there's health and safety concern. In addition, just because it irritates me, I. I recently kind of a nerd and I recently looked at the approved md waiver, the a and dici policy and the state regs, they do not align. I can't now. Who all give all of the regs. Do you follow the policy manual? The waivers are a major component. And almost de implementation in the us at this point in time. I do not believe our current waivers can support homestead. Thank you very much. Any questions from the Committee? Seeing none. Okay. Our next testifier will be. Cathy is off. Okay. Thank you for allowing me to be here today. My name is kathy roloff. Kathyrohloff.

Kathy Martineztestifier

My son jacob is 15 years old. He has profound autism, is functionally nonverbal, and is completely dependent on others for his adls and his iadls. He has significant medical, behavioral, and safety needs that require constant supervision. Jacob has historically been in the advanced funding tier, which dhhs described previously earlier this year as serving individuals with high supervision and support needs and behavioral and or medical complexities. I have six affidavits from medical providers and one affidavit from the school district documenting his need for this 24 hour care and supervision. One provider states. Without 1 to 1 support, jacob could be at immediate risk of serious harm, hospitalization, or institutionalization. His safety plan, which I've provided you a copy of, has nearly 50 medical, environmental, behavioral and legal risks that he is subject to. These are not theoretical risks. In the testimony I provided to you, I've given you examples out of protecting my son's dignity. I'm not going to tell you, but they involve issues of fire setting, elopement, and inappropriate sexual behavior in the community. Even the interrai assessment agrees with us on the on the scales that kick out of the inter ray he has on the aggressive behavior scale. In a 0 to 12 range, he scored ten, meaning more severe aggression on the distractibility hyperactivity scale 0 to 16. He's a 16. He's off the charts. When you look at risk of injury to others on a 0 to 6 range, he's a four on a risk of harm to himself. He's a five. Please keep in mind that these scales don't accurately show my son's deficits, because I'm still in appeal, and I can't get the questions answered correctly because of changes that dhhs has made to the inter ray manual, and they're not following the way it was intended by its authors. So let's enter into the case mix index. In 2025, dhhs implemented this assessment inter aria assessment tool. They chose to use the case mix index as the funding algorithm. We need to bifurcate those two concepts because they are two different things. According to the medical journal that the case mix index was based upon. It is not to be used for funding decisions. My son's needs did not change, but the scoring mechanism used to determine his level of disability did. And this placed him in an inaccurate funding level, which places his health and safety at risk. The problem is that the funding algorithm that was used, the case mix index, fails to account for the functional needs of the persons with the disability. Last legislative term LB 958 was passed at a 47 to 0 vote in there, and also comparing to dhhs own regulations regarding funding, these determinations need to be based on functional need. The case mix index is not doing that.

Kathy Martineztestifier

I've provided you a document that shows where the criteria that my son's funding was placed on, and which of these items were based on functional need and which ones were not. I've also provided you a document, the actual case mix index that that was created for arkansas. And there's a ton of black box warnings on here that. And I've also got listed questions that the disability community is asking. Obviously, I'm going to try to keep to my three minutes so I can't go on further. You're at it. But can I, may I finish? May I have you finish? If you could kind of. Go quickly. Earlier this year, we received notification that jacob's funding tier had dropped not one, but two levels down to intermediate. This suggests that he only requires a moderate level of supervision and support, and it does not provide for his 24 hour care. This dropped his funding by $180,000, which is a 59% reduction. In addition to reducing it by reducing his budget, it limits the amount that his providers can get paid to care for the needed services to take him into the community. It's a 42% drop in pay from $33.55 to $19.53. That rate is $5.50 lower than what it will cost. What they would get paid to care for him in our home. So this will effectively disallow him from being able to go into the community, because who's going to want to take him out in the community when he potentially is going to run away, potentially expose himself, be potentially socially inappropriate with the case mix. The only way that my son can get the support that he needs is if he's paralyzed, which he's not, or if I walk away. Please let that sink in. Dhhs says that my son only needs advanced level of funding if I abandon him from a moral and ethical perspective, as well as a fiscal perspective. This does not make sense. If if I have to walk away from him, the cost to the state is going to be at minimum 3 to 4 times higher than it will be to just support me to keep him in my home. My last comment in 1981, your predecessors passed ll.b. 389. I've given you a copy of it. It codified. It was a declaration that it upholds the values of the disabled person and their family. My fervent plea to you is please, please, please find a way to protect the health, safety and welfare of the developmental developmentally disabled individuals such as my son, and to keep them intact with their family, because many of them is really all they've got in life, is the people that love them, that bore them, that spend time with them, that care for them. Please help us. Thank you. Let me see if the Committee has some questions. I just have a comment. Comments are welcome.

Kathy Martineztestifier

Thank you so much for being here and I really appreciate your comments, your, you know, your advocacy for your for your son. Thank you for letting me come. Any other questions? Okay. Thank you very much for being here. Our next person is tony sorensen. Oh. I'm sorry. Okay. If you'd be kind enough to please state your name and spell it. You've you've been here for a while, so. Welcome and free to please. Tory sorensen, torisorensen. And out of abundance of transparency. I want to tell you, Senator, that I am a people pleaser. So I'm going to walk you through what I have here. Instead of giving a written comment. Thank you. I am a physical therapist. I've been working on figuring out this nri for 7 or 8 months. I figured out what the state isn't willing to tell you. So page one in your packet. Some research terms. What is reliability, validity, and generalization? What the nri case mix index is measuring is not what they're explicitly stating. It's not measuring the functional needs of an individual. It is taking into account if they have family at home. That is what tony referred to as available supports. And this tool is only looking to fund the unmet needs of individuals. That's why we have a problem here. So I gave you two participants children and adult. You can read through that and see how two very different individuals can come up with the same funding tier to get us all on the same page. This is pronounced interrai. I've listed some information on there about the case mix indexes. Why appeals aren't working. This is what dhhs isn't willing to share with you. These are the six questions that determine funding for children. I have a child in my home right now who is advanced funding because two questions determined that his age and that he has no supportive relationship with his family. A couple pages down, you'll see the adult one, and I'm going to show you that in in four years, when he is retested, he's going to go down to intermediate based on the research. It's not measuring the same thing. I've read the research for you and provided you quotes from the research, and highlighted the ones that I feel are most important. Dhhs has taken apart their descriptions of funding tiers. It no longer means anything. It doesn't say that an advanced individual needs this level of care. It says an advanced individual meets the definition of a case mix index of whatever. So they're taking that apart. Case mix index for adults. As I said, the child that I have in my home at 18, he's going to go to intermediate because he left home before the age of five. That is what's going to determine his funding tier getting slashed in half. Some quotes from the adults.

Kathy Martineztestifier

Nri functional hierarchy scale is the first part of the branches. This is research that's based on geriatrics. It wasn't meant for our population. In addition, Nebraska made seven mistakes when they copied from the research to what we are using today seven typos, seven errors. Two of the errors have problems with funding. Two of the errors caused problems with eligibility, and three of the errors probably don't make any difference at all. But last two things to end with. I want you to read this paper about Nebraska's fo mco. Our our governor just signed a great thing that's supposed to protect individuals from managed care policies. Instead of sending these individuals to managed care organizations, dhhs has become the managed care organization, and they're implementing the harmful strategies and just not using the managed care organizations to do it. So I would challenge that. They are not they're not in line with the intent of that law that was just passed. And these are my things that this is a life and death situation. I think the hold harmless needs to happen, but 25% have gone up. We're a republican state. We are against waste and fraud. Why are we celebrating people going up and funding people who have asked the state that they don't want that funding. The state will not lower them because they are using the case mix index as a strict prescription, and the resource research does not support that. Thank you. Yep. Can we see if our Committee has some questions? Did I win? You're just a little over, but. I tried really hard. Anyway, that's my failure. Oh, shoot. Okay. Seeing no questions. Thank you very much for being here. I appreciate and we appreciate you've done a lot of work, as many of you have, and we do appreciate the homework. It's a lot of stuff that comes after us, and we're trying to get up to speed and a lot of multitude of things that we need to know about or learn about. And we never become experts on any of it. But we can be people that do provide oversight. That's, that's our primary job. That's why I gave you the cliffsnotes version for your reference. Do you remember me from my college days? Thank you. Our next testifier is a miss carol selber. Can I miss that one? Okay. If you'd be kind enough to state your name, spell your name, and go right into your presentation. Please. All right. My name is carol sauber. It's carolsalber. I am a licensed independent mental health practitioner. I'm also a mom and legal guardian to a 28 year old son in waiver services. So my goal with my testimony today is really to hit on three specific areas. I've shared information with you, so I'll try and give you the cliffsnotes versions as well.

Kathy Martineztestifier

I'd like to talk about the service need assessment that has been implemented by the division starting in july 1st of this year for the aged and disabled waiver. I'd also like to talk about informal supports and paid supports, and a little bit of the difference with that. You'll notice as you go through there that I like a good chart. So I made some charts for you. Page one. I've had families, I've spoken with many families across the state, and families have graciously shared some of their information with me on the condition that I heavily redact the information. So the first two pages of the handout are notice of decisions that families have received after their family, their loved one have gone through the service needs assessment. The top one, the first one, their personal care hours were reduced to 21.75 hours per week. From the initial 144 hours. This is an over 80% cut in their in their hours that they were approved of, the next individual had their hours cut to 44.75 hours cut per week. I also have a. An example of the service needs assessment that is being completed that the division is using to come up with those. 21.7544.75 numbers. To give you an idea of how this is being broken down. So for example, you have x amount of numbers to give and help an individual with a shower or helping them shave. Estimated time may be for oral care. You can have a few minutes to help your loved one brush their teeth. Medications that doesn't even factor in because that is assumed that they're living with their family. Family is going to take care of that. So that isn't factored in. There's even time allotted for wheelchair maneuvering, so I do not use a wheelchair. I don't know how much time, but hopefully nothing breaks down because I'm sure you're probably go over your allotted minutes there. Meal preparation, money management, all of these services that you can see in the service need assessment are given a minute total. So you can go through that and see exactly how the state is looking at things, breaking it down, and in essence, nickel and diming our families. We are in essence, throwing grandma off the couch so we can shake the couch cushions for coins. 44.75 hours 21.75 hours. You cannot go over ten minutes to help your loved one shower. This is what we have become. This leads me to the informal supports as I have two children, one of whom has severe intellectual disability. He has severe autism. He has epilepsy, he has gerd. He has a slew of other medical health conditions, which of course were not entered into his inter hour assessment because it honestly did not matter.

Kathy Martineztestifier

So I thought it would be a good idea to compare what it's like to parent a typical child, as opposed to caring for an adult with special needs or extreme needs. All right, you have the handout. I'm sure those of you who are parents taking a look at what does it look like for typical parents and what is it for providing care for someone with a disability because they are not the same thing. We are not as parents or relatives getting paid to parent our children. Grandparents are not getting paid to grandma and hang out with family. The third chart will give you a little flow chart of how services are paid, who gets paid, how does that get decided and how does that budget get determined? Okay, this is a human dignity issue. Some questions from the Committee. Any questions? Seeing none. Thank you very much for being here. You're welcome. Our next testifier is a gentleman by the name of mr. Mike brown. Yes. Mr. Mr. Brown. Good afternoon. Before, if you would just state your name and spell it for our record. All right. Thank you. Yeah. And since my name is mike brown, mikebrowne, it's the irish derivation. So I listened very carefully to the three minutes. Chairman and I tried to make some edits so I can get this done in time. And we're all hungry probably. So I'm going to move on. I'm the father of two profoundly developmentally disabled autistic sons, age 45 and 48, and I'm 73. And for the past three and a half years, I've also served on Nebraska's developmental disabilities advisory Committee, including as vice chair. I'm going to talk about something a little broader today than just the inner eye in any particular part, mainly because the experts that were here talked about those in in the detail that you need to hear. I've had a front row seat for three and a half years as dhhs has made one major change after another to Nebraska's developmental disability service and support system. Some of those changes made sense to me. Ending the waitlist made sense, reaching people who weren't being served makes sense. Modernizing an old assessment system certainly sounded reasonable, but the changes kept coming. My sense is today you're feeling like you're taking in things through a fire hose, and that's the way we've been doing it for three and a half years. New waivers, new eligibility approaches, new assessment system, new funding methodologies, changes to regulations and statutes, changes involving funding tiers and exceptions. At some point, I stopped looking at these as individual changes and started asking myself, what exactly are we building here? Or maybe the better question is what are we deconstructing and why? I use the word deconstructing very deliberately. I don't mean updating a program or replacing an outdated assessment tool.

Kathy Martineztestifier

I mean taking apart an existing framework piece by piece and replacing the programs and structures on which the framework was built. And I'm increasingly concerned that may be what we're seeing. Now, I want to be very careful about what I'm saying here. I three minutes, three minutes. Wow. Okay. Well, I got to get this out. I'm not telling you that I know there's some master plan inside dhhs to dismantle Nebraska's current disability framework and replace it with something else. I don't know that. What I'm saying is that after watching this for three and a half years, I think this Legislature needs to find out, because there has always been another question sitting beneath this. And that's money. And today, we don't have to look very hard to hear and hear lots of discussions about states budgets. We did ask about money. We were repeatedly told as far back as 2024, these changes weren't being driven by money. And to be fair, the state could point to several million dollars initially of new investment. But at the same time, Nebraska was talking about bringing in several thousand additional new people into services. Some of us kept asking the basic question, how do you dramatically expand the number of people being served without increasing the cost of the system? Senator vargas essentially asked that question of director green before the appropriations Committee in 2024. I don't think we ever received a complete answer. And I know the developmental disabilities advisory Committee has not. So that's why I hope LR 404 goes beyond merely looking at the nri and some of the other terms. Investigate a lot of other things. The the only last comment I'll make here, chairman, is. Look what's happening to funding tiers looks. What's happening to risk tiers and exception funding. Look at budget caps. Look at the changes in the aged and disabled waiver. Look at regulations and statutory changes. But most importantly look at the budget assumptions behind all of this. And when those assumptions were made, when today, the program for 24, which is the budget line, the developmental disability age approved budget is a mere 1.7%, net of the total Nebraska fiscal 27 budget. Certainly a lot of change. We're into the second three minutes here. Yeah, certainly a lot of change for a small part of the budget. Thank you. Okay. Thank you. I'll take any questions. I'm going to see if we have any questions. Senator quick, do you have any questions, Senator? Yes. Thank you, mr. Brown. And I missed your testimony. Did you did your sons move tears in the recent. Or were they were they at the assessment system? Were they moved? They originally they fell two ratings. They fell from advance funding down to intermediate. And then through what they call a redetermination. They were moved up to high. But they are. My sons are incontinent.

Kathy Martineztestifier

They my sons just just put it bluntly, are completely undiagnosed. I've got essentially two carbon copies and we have no idea where, where or why they came from. I have 65 first, first cousins and nothing in our family. And then my boys came along. They have they're in the lower 2 to 3% of all people with developmental disabilities. They're nonverbal, incontinent behaviors and medically fragile in both cases. Okay. Thank you. I appreciate you being here. Thank you for your testimony. Anything else? We have another question. How long? Like from the time that you were assessed. And then to go back to that, you appealed it. That right? Yes. So how long did that take. The original appeal? Well, we just actually went through our appeal, I think a couple of weeks ago. So the original was back in. We got the notification in the 1st of november of last year. And then the appeal process went on and on. And one of the reasons that it was, it was not just dhhs. My wife was going through cancer treatment at the same time. So we were back and forth to m.d. Andersen in houston. And so they pushed out, pushed out. So we just went through that. We haven't got a determination yet in answer to your question, and that's been about two weeks now. Okay. But they left them at the top tier while this. Yes. While you while you are in, while you if you if you go through the appeal process, your continued funding goes on until there's a final disposition. I think that's the word disposition. Does that make sense? Any other question? What would your family have to do if. Well, okay, so that's the really good question. My wife and I, two years ago, three years ago, four years ago, got to the point that no agency would take. Our sons and I live in lincoln, and they actually said, dhhs said, we understand that there's nobody in lincoln or omaha that would take your sons. They would have to be split up, and we'd have to beg somebody and maybe western Nebraska to take these kids. And that just didn't ring very true to us. So we went through a process of essentially setting up our own agency targeting and serving that particular population. And the irony is, this was the year after we set it up. We got renewed for two years. Normally, when they reapply for the second year as an agency, they give you about a one year extension. We did so well. We got a two year. And in this particular situation, this was the year that we were going to expand it to other kids, just like my boys, because we know that there's a different model for serving the population we're talking about with my kids.

Kathy Martineztestifier

In fact, we've gone from the institutional era to the one size fits all era, and we need to move rapidly into a more expanded era where we serve different populations in different ways. And that's what we had committed to do. And this blew it up. I'm not certain if we don't get the funding right, that we can even maintain the agency and we run it. It's a nonprofit. We take no money out of it. It all goes to serving the people. And that serving the dsps or the professionals that work in that, so that we're on a we are on a cliff's edge, to be very frank. And one of the things that I think if you can get. Director green back at some point and talk to him about. We know that there's another 5% cut coming to his budget. I mean, he was very clear about that in our last meeting, and it's what I call the trinity. It's going to affect eligibility. It's going to affect program cuts, and it's going to affect funding. And those are absolutely straightforward out there. They're working on it. They'll be telling us the first of the year, and I give him credit. He told us 100%, this is going to happen. We're not exempt, but we're already collapsing. And I think you've all heard that today. And by the way, many of the people here are professional doctorate level, master's level. They know what they're talking about. This is a absolute we're on the cliff edge, just straightforward and being blunt. And for three and a half years, I've seen this and I don't know where we're going and nobody knows where we're going. Certainly the Legislature should know where we're going. Any other questions? Thank you. Questions. Thank you. Thank you very much. Sad stories today. Thank you very much for being here. And we were all we would invite Senator rountree to join us and sort of. Give us a wrap up, if you will, or whatever you feel comfortable with. Thank you so much, mr. Chair. And I, first of all, thank all of our testifiers for coming and testifying today. We've heard a tremendous amount. We recognize that it's a lot of work to be done. I would state that I believe what our families are looking for is open, honest, transparent communication, knowing how decisions are made and not hiding anything behind the curtain, but putting everything out front. And we can make good decisions with good information. So we recognize it. That changes that we've talked about today and the waiver services that are not just small tweaks. You've heard the greatest. We've heard the middle part the least, but yet they are live and they are impacting families right now as we speak. What I would ask of dhhs, I know that mr. Greene testified.

Kathy Martineztestifier

He stated that even for those that have gone up in tears that are getting additional funding, if we put a pause or we revert it back, that it would hurt them. But I would say, well, leave them where they are, but go back and let's have a policy of doing no harm. But those who have lost, those that are struggling now, we can revert them back to where they were until we get this system, this enterprise, worked out. Other items that need to be taken care of. Let's hold fast until we get that done. And then we could go forward and take care of our vulnerable community as they should be taken care of it. We recognize there's funding issues that's going to be across the board, but let's not lose our humanity. Let's take care of our nebraskans. And I believe that as we do that our budget take care of itself. We do have a lot of work to do ahead of us, and we will get down to the business of doing that work. So thank you to the Committee for our hearing on today and from what we'll take from here, we'll go forward and try to get legislation that's going to put everybody in a better position. Thank you so much. Thank you. You've been a real champion on this, and we respect and admire you for that. And I know that you've committed a lot of time and personal energy to it. So bless you for it. With that, are there any other comments? If not, that concludes our hearing today on LR 404 has not been an easy hearing for any of us, but it's a necessary one. And we we do appreciate that. So thank you so very much. Thank you. Thank you. We have another hearing coming up here in a few minutes. So.

Source: Health and Human Services/Urban Affairs Committees - Room 1023 · September 18, 2026 · Gavelin.ai